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最好的时代,也是最坏的时代。

The Best of Times and Yet the Worst of Times.

作者信息

Greear Emma, Kazmi Taskeen R, Bankole Adegbenga

机构信息

Rheumatology, Carilion Clinic, Roanoke, USA.

出版信息

Cureus. 2021 Dec 7;13(12):e20231. doi: 10.7759/cureus.20231. eCollection 2021 Dec.

DOI:10.7759/cureus.20231
PMID:35004048
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8730794/
Abstract

Young adults represent a vulnerable population for multiple reasons. This time in an individual's life coincides with many personal and professional changes and challenges. Some individuals may embrace the change, but for those with a chronic illness, this transition may be difficult. As one is navigating decisions that will ultimately impact their future, they must also navigate changes related to their healthcare. Here, we discuss a case involving a transition from a pediatric to an adult rheumatology clinic and the impact on the patient. This case will highlight some of the challenges patients face and will explore how this process could be improved for our patients. For many young individuals, this is the best of times as they are transitioning to an adult but also the worst of times as they must now make adult decisions with adult consequences.

摘要

由于多种原因,年轻人是一个弱势群体。在一个人的生命中的这个时期,恰逢许多个人和职业上的变化与挑战。一些人可能欣然接受这些变化,但对于那些患有慢性病的人来说,这种转变可能很困难。当一个人在做出最终会影响其未来的决定时,他们还必须应对与医疗保健相关的变化。在此,我们讨论一个从儿科风湿病诊所过渡到成人风湿病诊所的案例及其对患者的影响。这个案例将突出患者面临的一些挑战,并探讨如何为我们的患者改进这一过程。对于许多年轻人来说,这是他们向成年人过渡的最好时光,但也是最糟糕的时光,因为他们现在必须做出会带来成人后果的成人决定。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/66e9/8730794/6a69ecbdd36c/cureus-0013-00000020231-i02.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/66e9/8730794/edc32161f824/cureus-0013-00000020231-i01.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/66e9/8730794/6a69ecbdd36c/cureus-0013-00000020231-i02.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/66e9/8730794/edc32161f824/cureus-0013-00000020231-i01.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/66e9/8730794/6a69ecbdd36c/cureus-0013-00000020231-i02.jpg

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本文引用的文献

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Mind the Gap: Improving Care in Pediatric-to-Adult Rheumatology Transition Through Education.关注差距:通过教育改善儿科到成人风湿病学过渡的护理。
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EULAR/PReS standards and recommendations for the transitional care of young people with juvenile-onset rheumatic diseases.EULAR/PReS 关于青少年发病的风湿性疾病患者过渡性照顾的标准和建议。
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Trust in physicians and elements of the medical interaction in patients with rheumatoid arthritis and systemic lupus erythematosus.类风湿关节炎和系统性红斑狼疮患者对医生的信任及医疗互动要素
Arthritis Rheum. 2006 Jun 15;55(3):385-93. doi: 10.1002/art.21988.
8
Gender and ethnic origin have no effect on longterm outcome of childhood-onset systemic lupus erythematosus.性别和种族对儿童期起病的系统性红斑狼疮的长期预后没有影响。
J Rheumatol. 2004 Aug;31(8):1650-4.
9
Transition from pediatric to adult-oriented health care: a challenge for patients with chronic disease.从儿科医疗向成人导向型医疗的过渡:慢性病患者面临的一项挑战。
Curr Opin Pediatr. 2001 Aug;13(4):310-6. doi: 10.1097/00008480-200108000-00004.