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打破常规:解释青少年 WS 患者如何通过音乐学习生活技能的理论。

Breaking the Mould: A Theory Explaining How Young Adults Living with WS Learn Life Skills through Music.

机构信息

Musical Arts in South Africa: Resources and Applications (MASARA), School of Music, North-West University, Potchefstroom 2520, South Africa.

出版信息

Int J Environ Res Public Health. 2021 Dec 21;19(1):49. doi: 10.3390/ijerph19010049.

DOI:10.3390/ijerph19010049
PMID:35010310
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8744664/
Abstract

This article presents a theory explaining how young adults living with Williams syndrome (WS) learn life skills through music. The article answers the question: What theory explains how young adults living with WS learn life skills through music? The theory presented in this article is informed by principles of care ethics and compassionate music education and theories of wellbeing and flourishing. The theory is further informed by empirical data, including data collected during semi-structured interviews, casual conversations, observations, field notes, and social media and blog posts collected at Berkshire Hills Music Academy, Massachusetts, USA, over six weeks. Thematic analysis was the data analysis strategy. The theoretical proposition represented by the findings is: (i) If young adults living with WS have the opportunity to learn through engagement in music activities within a safe environment in which they are engaged, supported, appreciated, motivated, feel that they belong and feel that they are competent, and (ii) if educators are willing to focus on the abilities of these young adults by putting their needs first, (iii) then young adults living with WS should be able to overcome various challenges and ultimately develop the life skills they need to live well.

摘要

本文提出了一个理论,解释了患有威廉姆斯综合征(WS)的年轻人如何通过音乐学习生活技能。本文回答了一个问题:什么理论解释了患有 WS 的年轻人如何通过音乐学习生活技能?本文提出的理论受到关怀伦理和富有同情心的音乐教育原则以及幸福和繁荣理论的启发。该理论还受到实证数据的影响,包括在美国马萨诸塞州伯克希尔山音乐学院六周内收集的半结构化访谈、随意对话、观察、实地笔记以及社交媒体和博客文章中的数据。主题分析是数据分析策略。研究结果所代表的理论命题是:(i)如果患有 WS 的年轻人有机会在一个安全的环境中通过参与音乐活动来学习,在这个环境中,他们得到关注、支持、欣赏、激励,感到归属感和能力感,并且(ii)如果教育者愿意通过关注这些年轻人的需求,将他们的需求放在首位,那么患有 WS 的年轻人应该能够克服各种挑战,并最终发展出他们过上美好生活所需的生活技能。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/9acb/8744664/0fdf4b213870/ijerph-19-00049-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/9acb/8744664/37c52a12641e/ijerph-19-00049-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/9acb/8744664/0fdf4b213870/ijerph-19-00049-g002.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/9acb/8744664/37c52a12641e/ijerph-19-00049-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/9acb/8744664/0fdf4b213870/ijerph-19-00049-g002.jpg

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1
Breaking the Mould: A Theory Explaining How Young Adults Living with WS Learn Life Skills through Music.打破常规:解释青少年 WS 患者如何通过音乐学习生活技能的理论。
Int J Environ Res Public Health. 2021 Dec 21;19(1):49. doi: 10.3390/ijerph19010049.
2
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Cross-modal influences of affect across social and non-social domains in individuals with Williams syndrome.患有威廉姆斯综合征的个体在社会和非社会领域中情感的跨模态影响。
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A Distance-Delivered Social Skills Program for Young Adults with Williams Syndrome: Evaluating Feasibility and Preliminary Efficacy.远程社交技能训练对威廉姆斯综合征青少年的应用:可行性及初步疗效评估。
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本文引用的文献

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Testing an integrated self-determined work motivation model for people with disabilities: A path analysis.测试残疾人综合自主工作动机模型:路径分析。
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Music lessons are associated with increased verbal memory in individuals with Williams syndrome.
音乐课程与威廉姆斯综合征患者言语记忆的增强有关。
Res Dev Disabil. 2015 Jan;36C:565-578. doi: 10.1016/j.ridd.2014.10.032. Epub 2014 Nov 16.
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Making music, making friends: Long-term music therapy with young adults with severe learning disabilities.制作音乐,结交朋友:对重度学习障碍的年轻人进行长期音乐治疗
J Intellect Disabil. 2014 Mar;18(1):5-19. doi: 10.1177/1744629513511354. Epub 2013 Nov 6.
5
Musical learning in children and adults with Williams syndrome.儿童和成人威廉姆斯综合征的音乐学习。
J Intellect Disabil Res. 2013 Sep;57(9):850-60. doi: 10.1111/j.1365-2788.2012.01611.x. Epub 2012 Sep 14.
6
Effect of musical experience on verbal memory in Williams syndrome: evidence from a novel word learning task.音乐经验对威廉姆斯综合征患者言语记忆的影响:来自一项新的单词学习任务的证据。
Neuropsychologia. 2011 Sep;49(11):3093-102. doi: 10.1016/j.neuropsychologia.2011.07.016. Epub 2011 Jul 22.
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Auditory cortical volumes and musical ability in Williams syndrome.威廉姆斯综合征患者的听觉皮层体积与音乐能力。
Neuropsychologia. 2010 Jul;48(9):2602-9. doi: 10.1016/j.neuropsychologia.2010.05.007. Epub 2010 May 10.
8
Auditory attraction: activation of visual cortex by music and sound in Williams syndrome.听觉吸引:音乐和声音在威廉姆斯综合征中激活视觉皮层。
Am J Intellect Dev Disabil. 2010 Mar;115(2):172-89. doi: 10.1352/1944-7588-115.172.
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Language and communicative development in Williams syndrome.威廉姆斯综合征的语言与交流发展
Ment Retard Dev Disabil Res Rev. 2007;13(1):3-15. doi: 10.1002/mrdd.20140.
10
Musical behavior in a neurogenetic developmental disorder: evidence from Williams Syndrome.一种神经遗传性发育障碍中的音乐行为:来自威廉姆斯综合征的证据。
Ann N Y Acad Sci. 2005 Dec;1060:325-34. doi: 10.1196/annals.1360.027.