唐氏综合征患儿的照护：对生活质量、压力、心理和口腔健康的影响
Caregiving of children with Down syndrome: impact on quality of life, stress, mental and oral health.
作者信息
Dias Caroline, Schwertner Carolina, Grando Débora, Bidinotto Augusto Bacelo, Hilgert Juliana Balbinot, Schuch Jaqueline Bohrer, de Azeredo Lucas Araújo, Bauer Moisés Evandro, Hashizume Lina Naomi
机构信息
Department of Preventive and Social Dentistry, Faculty of Dentistry, Universidade Federal do Rio Grande do Sul, Porto Alegre, Brazil.
Service of Addiction Psychiatry, Hospital de Clínicas de Porto Alegre, Porto Alegre, Brazil.
出版信息
Spec Care Dentist. 2022 Jul;42(4):398-403. doi: 10.1111/scd.12694. Epub 2022 Jan 10.
AIM
Parental caregivers of children with Down Syndrome (DS) have a greater burden of daily activities that may affect their health. The aim of this exploratory study was to evaluate the impact of caregiving of children with Down syndrome on parenting quality of life, stress, mental and oral health.
METHODS
Fifty-four parental caregivers of children with DS and 51 parents of children without physical or mental disabilities participated of this study. All participants were clinically examined to evaluate the presence of dental caries, gingival conditions and answered a sociodemographic questionnaire. Depression, anxiety, quality of life and coping strategies were assessed using specific instruments. Hair cortisol level was assessed as biological marker of chronic stress.
RESULTS
Psychological and quality of life parameters were similar between the groups of caregivers (p > .05). Caregivers of children with DS were older (48.6 vs. 41.5, p < .001), had longer caregiving period (> 10 vs < 10 years, p = .003), presented higher gingival bleeding index (6.1 vs. 4.7, p = .014) and higher cortisol levels (55.9 vs. 38.4, p = .07) as compared with parents of children without disabilities. Sociodemographic data has no influence on cortisol levels (p > .05).
CONCLUSIONS
These findings suggest that the caregiving of children with DS has an impact on parenting oral health and stress.
目的
唐氏综合征（DS）患儿的父母照顾者在日常活动中负担更重，这可能会影响他们的健康。这项探索性研究的目的是评估照顾唐氏综合征患儿对父母生活质量、压力、心理和口腔健康的影响。
方法
54名唐氏综合征患儿的父母照顾者和51名没有身心残疾儿童的父母参与了本研究。所有参与者均接受临床检查以评估龋齿、牙龈状况，并回答了一份社会人口统计学问卷。使用特定工具评估抑郁、焦虑、生活质量和应对策略。头发皮质醇水平作为慢性压力的生物标志物进行评估。
结果
两组照顾者的心理和生活质量参数相似（p > .05）。与无残疾儿童的父母相比，唐氏综合征患儿的照顾者年龄更大（48.6岁对41.5岁，p < .001），照顾期更长（>10年对<10年，p = .003），牙龈出血指数更高（6.1对4.7，p = .014），皮质醇水平更高（55.9对38.4，p = .07）。社会人口统计学数据对皮质醇水平没有影响（p > .05）。
结论
这些发现表明，照顾唐氏综合征患儿会对父母的口腔健康和压力产生影响。
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