National Ageing Research Institute, Parkville, VIC, Australia.
The University of Melbourne, Parkville, VIC, Australia.
BMC Geriatr. 2022 Jan 11;22(1):42. doi: 10.1186/s12877-021-02727-4.
Our objective was to explore what people receiving and providing care consider to be 'good' in-home care for people living with dementia.
We conducted 36 in-depth interviews and two focus groups with key stakeholders in Australia in the first quarter of 2018. Participants included those receiving care (4 people living with dementia, 15 family carers) or providing care (9 case managers, 5 service managers, 10 home care workers). Qualitative thematic analysis was guided by Braun and Clarke's six-step approach.
Consensus was reached across all groups on five themes considered as important for good in-home dementia care: 1) Home care workers' understanding of dementia and its impact; 2) Home care workers' demonstrating person-centred care and empathy in their care relationship with their client; 3) Good relationships and communication between care worker, person with dementia and family carers; 4) Home care workers' knowing positive practical strategies for changed behaviours; 5) Effective workplace policies and workforce culture. The results contributed to the co-design of a dementia specific training program for home care workers.
It is crucial to consider the views and opinions of each stakeholder group involved in providing/receiving dementia care from home care workers, to inform workforce training, education program design and service design. Results can be used to inform and empower home care providers, policy, and related decision makers to guide the delivery of improved home care services.
ACTRN 12619000251123 .
我们的目的是探讨接受和提供护理的人认为对患有痴呆症的人进行家庭护理的“良好”之处。
我们于 2018 年第一季度在澳大利亚对主要利益相关者进行了 36 次深入访谈和两次焦点小组讨论。参与者包括接受护理的人（4 名患有痴呆症的人，15 名家庭护理者）或提供护理的人（9 名个案经理，5 名服务经理，10 名家庭护理人员）。定性主题分析受 Braun 和 Clarke 的六步方法指导。
所有组都就五个被认为对家庭痴呆症护理重要的主题达成了共识：1）家庭护理人员对痴呆症及其影响的理解；2）家庭护理人员在与客户的护理关系中表现出以人为主的关怀和同理心；3）护理人员、痴呆症患者和家庭护理人员之间的良好关系和沟通；4）家庭护理人员了解积极的实际应对行为变化的策略；5）有效的工作场所政策和劳动力文化。研究结果有助于为家庭护理人员设计专门针对痴呆症的培训计划。
从家庭护理人员、家庭护理人员、政策制定者和决策者的角度出发，考虑提供/接受痴呆症护理的每个利益相关者群体的观点和意见，对于培训、教育项目设计和服务设计至关重要。研究结果可用于为家庭护理人员提供信息和授权，以指导提供改进的家庭护理服务。
ACTRN 12619000251123。
