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加拿大囚犯的医疗协助死亡(MAiD):一系列已完成MAiD死亡案例中的护理障碍

Medical Assistance in Dying (MAiD) for Canadian Prisoners: A Case Series of Barriers to Care in Completed MAiD Deaths.

作者信息

Driftmier Peter, Shaw Jessica

机构信息

Faculty of Social Work, University of Calgary, Calgary, Canada.

出版信息

Health Equity. 2021 Dec 20;5(1):847-853. doi: 10.1089/heq.2021.0117. eCollection 2021.

DOI:10.1089/heq.2021.0117
PMID:35018318
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8742296/
Abstract

As of August 2020, 11 patients who were federally incarcerated in a Canadian prison requested medical assistance in dying (MAiD), and three received it. This case study seeks to understand the process of care as described by physicians involved in each of the cases that resulted in MAiD. During the summer of 2020, semistructured interviews were conducted with physicians involved in each known Correctional Service of Canada (CSC) MAiD case. Transcripts were summarized to illuminate details of the care process for each patient, highlighting barriers to patient-centered care. Each case took place in a different province. One MAiD provision took place in a prison hospital, and two provisions took place after the incarcerated patients were transferred to external community hospitals. Case summaries highlight the physicians' efforts and challenges in assuring patient-centered care. Physician experiences illuminate several barriers to care: CSC bureaucratic processes that forced longer wait times than typical for patients in the general public; challenges related to accessing release before MAiD application; knowledge of patient preference for location of death; concerns of voluntariness and confidentiality that are unique to CSC patients; and ethical considerations surrounding the presence of prison guards, police officers, and shackles at the time of assessment or provision. Reporting by the Office of the Correctional Investigator highlights additional challenges in these cases. Further inquiry is necessary to include the perspectives of prisoners and prison staff, and to consider how the evolution of new MAiD legislation will affect MAiD for prisoners.

摘要

截至2020年8月,11名被联邦关押在加拿大监狱的囚犯申请了医疗协助死亡(MAiD),其中3人获得了批准。本案例研究旨在了解参与导致MAiD的每个案例的医生所描述的护理过程。2020年夏天,对参与加拿大惩教署(CSC)已知MAiD案例的医生进行了半结构化访谈。对访谈记录进行了总结,以阐明每个患者护理过程的细节,突出以患者为中心的护理障碍。每个案例发生在不同的省份。一次MAiD批准在监狱医院进行,两次批准是在被监禁的患者被转移到外部社区医院后进行的。案例总结突出了医生在确保以患者为中心的护理方面的努力和挑战。医生的经历揭示了护理的几个障碍:CSC的官僚程序导致患者等待时间比普通公众更长;在申请MAiD之前获得释放方面的挑战;对患者死亡地点偏好的了解;CSC患者特有的自愿性和保密性问题;以及在评估或批准时监狱警卫、警察和镣铐在场的伦理考量。惩教调查员办公室的报告突出了这些案例中的其他挑战。有必要进一步调查,纳入囚犯和监狱工作人员的观点,并考虑新的MAiD立法的演变将如何影响囚犯的MAiD。

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本文引用的文献

1
Understanding the Policy Landscape Surrounding Medical Assistance in Dying in Canada's Federal Prison System.了解加拿大联邦监狱系统中围绕医疗协助死亡的政策环境。
J Correct Health Care. 2022 Apr;28(2):75-79. doi: 10.1089/jchc.20.05.0043. Epub 2022 Feb 10.
2
"Dying with a Smile, Just Knowing that Somebody's Listened to Me": End-Of-Life Care and Medical Assistance in Dying in Canadian Prisons.“含笑而终,只因为有人倾听了我的心声”:加拿大监狱的临终关怀和医疗协助自杀。
Omega (Westport). 2024 Mar;88(4):1290-1313. doi: 10.1177/00302228211052341. Epub 2021 Dec 31.
3
Forced and chosen transfers for medical assistance in dying (MAiD) before and during the COVID 19 pandemic: A mixed methods study.在 COVID-19 大流行前后,因医疗协助自杀(MAiD)而进行的强制和自愿转移:一项混合方法研究。
Death Stud. 2022;46(9):2266-2272. doi: 10.1080/07481187.2021.1888824. Epub 2021 Feb 20.
4
Towards a Guiding Framework for Prison Palliative Care Nursing Ethics.迈向监狱姑息治疗护理伦理的指导框架。
ANS Adv Nurs Sci. 2019 Oct/Dec;42(4):341-357. doi: 10.1097/ANS.0000000000000266.
5
Shared decision making--pinnacle of patient-centered care.共同决策——以患者为中心的医疗的巅峰。
N Engl J Med. 2012 Mar 1;366(9):780-1. doi: 10.1056/NEJMp1109283.
6
The case study approach.案例研究法。
BMC Med Res Methodol. 2011 Jun 27;11:100. doi: 10.1186/1471-2288-11-100.