12328Vanderbilt University Medical Center, Nashville, TN, USA.
435391Meharry-Vanderbilt Alliance, Nashville, TN, USA.
Hisp Health Care Int. 2022 Dec;20(4):238-247. doi: 10.1177/15404153211070821. Epub 2022 Jan 12.
Interest in the return of research results has been increasing; however, little is known about how Hispanics/Latinos perceive and value receiving results. This study examined differences among Hispanics/Latinos by education and income in the experience and expectations about the return of research results, perceived value of specific types of information, and the least and most valuable specific information. Retrospective observational design using a cross-sectional national survey sample of Hispanics/Latinos (n = 327). Higher educational attainment was positively associated with the expectation to receive research results, likelihood to participate in research if given study findings, and likelihood to trust researchers if given results. Higher income was positively associated with the perceived value of getting results. Respondents with higher education specifically perceived greater value in information about how lifestyle and genetics affect their risk of disease, how genetics affect how they respond to medications, their ancestry, available clinical trials near them, and how to connect with other study participants. Respondents with higher income perceived greater value in information about how genetics affect their risk of disease and how they respond to medications. The findings offer important insights for planning research initiatives and for developing culturally targeted educational materials for Hispanics/Latinos.
人们对研究结果回报的兴趣日益增加；然而，对于西班牙裔/拉丁裔如何看待和重视研究结果的回报，人们知之甚少。本研究通过横断面全国调查样本（n=327），考察了西班牙裔/拉丁裔人群中受教育程度和收入的差异，包括对研究结果回报的体验和期望、对特定类型信息的感知价值，以及最不重要和最有价值的特定信息。研究采用回顾性观察设计。受教育程度越高，期望获得研究结果、如果获得研究结果就参与研究以及如果获得结果就信任研究人员的可能性越大。收入越高，对获得结果的价值的感知就越高。受教育程度较高的受访者特别认为，了解生活方式和遗传如何影响他们患病的风险、遗传如何影响他们对药物的反应、他们的祖先是谁、他们附近有哪些临床试验，以及如何与其他研究参与者联系等信息更有价值。收入较高的受访者认为关于遗传如何影响他们患病的风险以及他们对药物的反应的信息更有价值。研究结果为规划研究计划以及为西班牙裔/拉丁裔制定有针对性的文化教育材料提供了重要的见解。
