Departamento de Fonoaudiologia, Universidade Federal de São Paulo - UNIFESP - São Paulo (SP), Brasil.
Departamento de Psiquiatria, Universidade Federal de São Paulo - UNIFESP - São Paulo (SP), Brasil.
Codas. 2022 Jan 7;34(3):e20210109. doi: 10.1590/2317-1782/20212021109. eCollection 2022.
The aim of this study was to analyze the repercussion of the implementation of PECS on the burden index of mothers of children with Autism Spectrum Disorder (ASD).
This was a longitudinal study (CEP 0403/2017). The sample consisted of 20 mother and child with ASD. The mothers were on average 41 years and 5 months and the children were 7 years and 2 months old. Fifteen children were male and five were female. The brazilian version of the Burden Interview scale was applied to verify the level of caregiver burden. The Autism Behavior Checklist (ABC) was applied to the analysis of non-adaptive behaviors and to analyze the lexical repertoire: Auditory and Expressive Vocabulary Tests. The PECS Implementation Program was composed of 24 sessions of individual speech therapy with the active presence of mothers. At the end all children and mothers were reevaluated with part of the instruments.
There was a tendency to reduce maternal overload indexes after the implementation of the PECS. There was a significant decrease in non-adaptive behaviors and an increase in the expressive and auditory vocabulary indexes of the children at the final moment of the study. We did not observe a significant correlation between the degrees of overload with age, schooling and intellectual quotient of children, nor schooling and maternal socioeconomic status.
It was possible to analyze the repercussion of the implementation of the PECS on the burden of mothers of children with ASD assisted by the Program.
本研究旨在分析实施图片交换沟通系统（PECS）对自闭症谱系障碍（ASD）儿童母亲负担指数的影响。
这是一项纵向研究（CEP 0403/2017）。样本包括 20 名患有 ASD 的母亲和儿童。母亲的平均年龄为 41 岁 5 个月，儿童的平均年龄为 7 岁 2 个月。15 名儿童为男性，5 名儿童为女性。使用巴西版负担访谈量表来评估照顾者的负担水平。自闭症行为检查表（ABC）用于分析非适应性行为，并分析词汇量：听觉和表达词汇测试。PECS 实施计划由 24 节个人言语治疗组成，母亲积极参与。在结束时，所有的孩子和母亲都用部分仪器进行了重新评估。
在实施 PECS 后，母亲的过载指数有降低的趋势。在研究的最后时刻，儿童的非适应性行为显著减少，表达和听觉词汇指数显著增加。我们没有观察到儿童的过载程度与年龄、教育程度和智商、教育程度和母亲社会经济地位之间存在显著相关性。
我们可以通过 PECS 实施计划分析其对 ASD 儿童母亲负担的影响。
