自闭症谱系障碍患者照顾者的心理困扰和感知负担。
Psychological distress and perceived burden in caregivers of persons with autism spectrum disorder.
机构信息
Faculty of Nursing, Al-Ahliyya Amman University, Amman, Jordan.
Family Service Thames Valley, Counselling & Psychological Statistician, Associated Professor of Psychotherapy and Counselling & Psychological Assessment, Registered Psychotherapist, RP, CCC, London, ON, Canada.
出版信息
Perspect Psychiatr Care. 2019 Jul;55(3):501-508. doi: 10.1111/ppc.12356. Epub 2019 Feb 6.
PURPOSE
To investigate psychological distress among parents of children with autism spectrum disorder and the associated sociodemographic factors influencing parents' distress.
DESIGN AND METHODS
A cross-sectional design with a sample of 123 Jordanian parents providing care to children with autism spectrum disorder was used. A sociodemographic questionnaire, the Oberst Caregiving Burden Scale, the Bakas Caregiving Outcomes Scale, and the Hospital Anxiety and Depression Scale were utilized for data collection.
FINDINGS
Parents reported moderate levels of burden, negative life changes, and borderline depression and anxiety. The perceived burden related to caregiving task difficulty positively correlated with that related to time spent on tasks and negatively correlated with caregivers' caregiving-related outcomes. The perceived burden of caregiving tasks was negatively correlated with depression and anxiety and anxiety levels were positively correlated with depression (P < 0.001).
PRACTICE IMPLICATION
Healthcare providers, advanced practice nurses, and policy makers should be aware of the burden, anxiety, and depression experienced by caregivers of children with autism spectrum disorder.
目的
调查自闭症谱系障碍儿童父母的心理困扰以及影响父母困扰的相关社会人口学因素。
设计和方法
采用横断面设计，对 123 名为自闭症谱系障碍儿童提供护理的约旦父母进行抽样调查。使用社会人口学问卷、奥伯斯特护理负担量表、巴卡斯护理结果量表和医院焦虑抑郁量表收集数据。
结果
父母报告了中等程度的负担、生活负面变化和边缘抑郁和焦虑。与照顾任务难度相关的感知负担与花在任务上的时间呈正相关，与照顾者的照顾结果呈负相关。照顾任务的感知负担与抑郁和焦虑呈负相关，焦虑水平与抑郁呈正相关（P < 0.001）。
实践意义
医疗保健提供者、高级执业护士和政策制定者应了解自闭症谱系障碍儿童照顾者所经历的负担、焦虑和抑郁。
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