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作为学科实践的表型分析:数据基础设施与加利福尼亚州药物使用方面的跨专业冲突

Phenotyping as disciplinary practice: data infrastructure and the interprofessional conflict over drug use in California.

作者信息

Hussain Mustafa I, Bowker Geoffrey C

机构信息

Department of Medical Informatics and Clinical Epidemiology (DMICE), Oregon Health & Science University (OHSU) School of Medicine, Mail Code: BICC. 3181 S.W. Sam Jackson Park Rd. Portland OR 97239.

Department of Informatics, University of California Irvine, Irvine CA 92697-3440.

出版信息

Big Data Soc. 2021 Jul 1;8(2). doi: 10.1177/20539517211031258. Epub 2021 Aug 16.

Abstract

The narrative of the digital phenotype as a transformative vector in healthcare is nearly identical to the concept of "data drivenness" in other fields such as law enforcement. We examine the role of a prescription drug monitoring program (PDMP) in California-a computerized law enforcement surveillance program enabled by a landmark Supreme Court case that upheld "broad police powers"-in the interprofessional conflict between physicians and law enforcement over the jurisdiction of drug use. We bring together interview passages, clinical artifacts, and academic and gray literature to investigate the power relations between police, physicians, and patients to show that prescribing data appear to the physician as evidence of problematic patient behavior by the patients, and to law enforcement as evidence of physician misconduct. In turn, physicians have adopted a disciplinary approach to patients, using quasi-legalistic documents to litigate patient behavior. We conclude that police powers have been used to pave data infrastructure through a contested jurisdiction, and law enforcement have used that infrastructure to enroll physicians into the work of disciplining patients.

摘要

数字表型作为医疗保健领域变革性载体的叙述,与执法等其他领域的“数据驱动”概念几乎相同。我们研究了加利福尼亚州处方药监测计划(PDMP)的作用——这是一个由最高法院的一个具有里程碑意义的案件促成的计算机化执法监测计划,该案件支持“广泛的警察权力”——在医生与执法部门之间关于药物使用管辖权的跨专业冲突中所起的作用。我们汇集了访谈段落、临床资料以及学术和灰色文献,以调查警察、医生和患者之间的权力关系,结果表明,处方数据对医生而言似乎是患者存在问题行为的证据,而对执法部门来说则是医生行为不端的证据。反过来,医生对患者采取了一种惩戒方式,使用准法律文件来对患者行为进行诉讼。我们得出结论,警察权力被用于通过有争议的管辖权来铺设数据基础设施,而执法部门则利用该基础设施让医生参与到对患者的惩戒工作中。

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