Justin Pauline, Dorard Géraldine, Baudry Valentine, Untas Aurélie
Université de Paris, Laboratoire de Psychopathologie et Processus de Santé, F-92100 Boulogne-Billancourt, France.
Université de Paris, Laboratoire de Psychopathologie et Processus de Santé, F-92100 Boulogne-Billancourt, France.
Patient Educ Couns. 2022 Jul;105(7):2524-2530. doi: 10.1016/j.pec.2022.01.014. Epub 2022 Jan 24.
Increasing numbers of youths are facing a relative's cancer. In this context, some are required to provide significant support and are called young carers (YCs). However, little is known about how these youth are viewed and supported by health professionals. The aim of this study was to investigate the knowledge, attitudes, and practices of oncology healthcare professionals regarding YCs.
Thirty-one oncology professionals working in France (adult and pediatric departments and homecare services) participated in semi-structured interviews.
The results indicated that almost all professionals had already met a YC and could identify several situations in their professional context. Their knowledge of YCs appeared to influence their attitudes and practices. They perceived this situation in a rather superficial way when their discourse and ideas were explored in-depth. They mentioned some ideas for improving support for YCs, but also many barriers.
The results highlight a moderate level of awareness. Thus, it is necessary to enhance providers' awareness and knowledge of YCs.
Awareness campaigns and training programs need to be developed for oncology healthcare professionals to help them better identify, understand, and support YCs and their families. This type of action would positively impact patient care.
越来越多的年轻人面临着亲属患癌症的情况。在这种背景下，一些人需要提供重要支持，被称为年轻照顾者（YCs）。然而，对于这些年轻人如何被医疗专业人员看待和支持，我们知之甚少。本研究的目的是调查肿瘤医疗专业人员对年轻照顾者的了解、态度和做法。
31名在法国工作的肿瘤学专业人员（成人和儿科科室以及家庭护理服务部门）参与了半结构化访谈。
结果表明，几乎所有专业人员都已经接触过年轻照顾者，并能在其专业背景中识别出几种情况。他们对年轻照顾者的了解似乎影响了他们的态度和做法。当深入探讨他们的话语和想法时，他们对这种情况的理解相当肤浅。他们提到了一些改善对年轻照顾者支持的想法，但也指出了许多障碍。
结果凸显了中等程度的认知水平。因此，有必要提高医疗服务提供者对年轻照顾者的认知和了解。
需要为肿瘤医疗专业人员开展宣传活动和培训项目，以帮助他们更好地识别、理解和支持年轻照顾者及其家庭。这类行动将对患者护理产生积极影响。
