Hinton Tori, Burns-Nader Sherwood, Casper Deborah, Burton Wanda
Department of Human Development and Family Studies, The University of Alabama, Tuscaloosa, Alabama, USA.
Department of Health Science, The University of Alabama, Tuscaloosa, Alabama, USA.
J Psychosoc Oncol. 2022;40(5):652-665. doi: 10.1080/07347332.2022.2032530. Epub 2022 Feb 3.
This study examines adult childhood cancer survivors' memories about diagnosis, coping, and life effects of cancer. This qualitative study used inductive content analysis to analyze open-ended responses completed in a survey conducted in 2018. 27 adult survivors (15 male, 12 female) of childhood cancer, ranging in age from 20-39, who were at least 5 years post treatment. Participants recruited through Amazon Mechanical Turk responded to a survey which included open-ended questions about experiencing childhood cancer to examine their: (1) memories of initial reactions to cancer; (2) memories of coping during cancer; and (3) reflections of the cancer experience on who they are today. Inductive content analysis was performed to reveal categories related to the stories shared by participants regarding their memories of childhood cancer experiences. Participants' memories of diagnosis reflected categories such as psychological reactions and family support. Memories of coping reflected themes of family support and distraction. Participants' reported strength and resilience as impacts of cancer on their present lives. These findings indicate that survivors of childhood cancer have strong, specific memories about diagnosis and coping during cancer and highlight the potential long-term implications of having cancer. The findings also illustrate the importance of appropriate psychosocial support for childhood cancer patients and survivors.
本研究考察了成年期儿童癌症幸存者对癌症诊断、应对方式及癌症对生活影响的记忆。这项定性研究采用归纳式内容分析法,对2018年一项调查中收集的开放式回答进行分析。27名年龄在20至39岁之间、治疗后至少5年的成年期儿童癌症幸存者(15名男性,12名女性)参与了研究。通过亚马逊土耳其机器人招募的参与者对一项调查做出回应,该调查包含关于童年患癌经历的开放式问题,以考察他们:(1)对癌症最初反应的记忆;(2)患癌期间应对方式的记忆;以及(3)癌症经历对他们当下自我认知的影响。研究进行了归纳式内容分析,以揭示与参与者分享的童年癌症经历记忆相关的类别。参与者对诊断的记忆反映出心理反应和家庭支持等类别。应对方式的记忆反映出家庭支持和转移注意力等主题。参与者报告称,癌症对他们当下生活产生了力量和恢复力等影响。这些发现表明,儿童癌症幸存者对癌症诊断和患癌期间的应对方式有着强烈、具体的记忆,并凸显了患癌可能产生的长期影响。研究结果还说明了为儿童癌症患者及幸存者提供适当心理社会支持的重要性。