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“他们不理解”:探索成年癌症幸存者对其与同龄人相处经历的记忆。

"They Did Not Understand": Exploring Adult Survivors of Childhood Cancer's Memories of Their Experiences With Peers.

机构信息

University of Alabama, Tuscaloosa, AL, USA.

出版信息

J Pediatr Hematol Oncol Nurs. 2024 Jul;41(4):276-282. doi: 10.1177/27527530241245657. Epub 2024 Aug 21.

Abstract

Peer relationships are impacted by the diagnosis of childhood cancer. Children with cancer can feel isolation, such as bullying and lack of engagement, from their peers. As the rates of survival increase, one way to further learn about the experiences of childhood cancer is to reflect on the memories of adult survivors. This study examines adult survivors of childhood cancer's memories of their experiences with peers during their cancer. Twenty-seven adult survivors (15 male, 12 female) of childhood cancer were recruited from Amazon Mechanical Turk, a crowdsourcing marketplace for survey distribution, and surveyed about their experiences with peers during childhood cancer. Using inductive thematic analysis, open-ended survey questions were analyzed. Five main themes emerged, including age, perceptions of cancer, acts of kindness, peer responses, and limited peer engagement. Participants' memories included peers' lack of understanding about their diagnosis, prognosis, and treatment, positive and negative responses to their cancer diagnosis, acts of services and gifts from peers, and feelings of isolation during the cancer experience. In the current study, adult survivors of childhood cancer had specific memories about how cancer impacted peer relationships. Such findings contribute to the evidence that children with cancer could benefit from psychosocial interventions, including education to peers about the diagnosis and the impact of diagnosis on peer relationships, peer engagement activities, and peer support groups.

摘要

同伴关系会受到儿童癌症诊断的影响。癌症患儿可能会感到与同伴隔离,例如受到欺凌和缺乏参与感。随着存活率的提高,进一步了解儿童癌症患者经历的一种方法是反思成年幸存者的记忆。本研究考察了儿童癌症成年幸存者对其癌症期间与同伴经历的记忆。 本研究从亚马逊 Mechanical Turk 招募了 27 名儿童癌症成年幸存者(15 名男性,12 名女性),这是一个众包市场,用于调查分发,并对他们在儿童癌症期间与同伴的经历进行了调查。使用归纳主题分析,对开放式调查问题进行了分析。 出现了五个主要主题,包括年龄、对癌症的看法、善举、同伴反应和有限的同伴参与。参与者的记忆包括同伴对他们的诊断、预后和治疗缺乏了解、对他们的癌症诊断的积极和消极反应、来自同伴的服务和礼物的行为,以及在癌症经历中感到孤立。 在目前的研究中,儿童癌症的成年幸存者对癌症如何影响同伴关系有具体的记忆。这些发现有助于证明癌症患儿可能受益于心理社会干预,包括向同伴传授有关诊断的知识以及诊断对同伴关系的影响、同伴参与活动和同伴支持小组。

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