Bjønness Stig, Grønnestad Trond, Johannessen Jan O, Storm Marianne
Department of Public Health, Centre for Resilience in Healthcare (SHARE), Faculty of Health Science, University of Stavanger, Stavanger, Norway.
Department of Public Health, Faculty of Health Science, University of Stavanger, Stavanger, Norway.
Health Expect. 2022 Jun;25(3):994-1003. doi: 10.1111/hex.13443. Epub 2022 Feb 7.
Parents are a resource that can be of considerable importance in supporting their adolescents' recovery and shared decision-making processes. However, involving both adolescents and their parents in treatment creates challenges. Understanding the roles of all decision stakeholders is vital to the implementation of shared decision-making and delivery of high-quality healthcare services.
The aim of this study is to explore parents' experiences with adolescents' participation in mental health treatment and how parents perceive being involved in decision-making processes.
This was a qualitative study with a phenomenological, inductive design. Content analysis of data from qualitative interviews was performed.
This study took place in a Norwegian public healthcare setting. Twelve parents of adolescents who received treatment for severe mental illness participated.
Four themes were identified: (1) self-determined treatment, but within limits; (2) the essential roles of parents; (3) the need for information and support; and (4) the fight for individualized treatment and service coordination.
User participation is vital in adolescent mental healthcare and parents play essential roles regarding the shared decision-making process. However, user participation and shared decision-making pose several dilemmas. Parental involvement in treatment decisions may be necessary when adolescents are mentally ill, but could simultaneously hinder those adolescents' empowerment and recovery. Cooperation among parents, adolescents and healthcare professionals can improve treatment engagement and adherence, but may be challenged by divergent interests. Health services should provide family-oriented services to utilize the potential of parents as a resource and minimize conflicting interests.
Two adolescent user representatives participated in designing the study.
父母是一种资源，在支持青少年康复及共同决策过程中可能具有相当重要的意义。然而，让青少年及其父母都参与治疗会带来挑战。了解所有决策利益相关者的角色对于实施共同决策和提供高质量医疗服务至关重要。
本研究旨在探讨父母对青少年参与心理健康治疗的经历，以及父母如何看待自己参与决策过程。
这是一项采用现象学归纳设计的定性研究。对定性访谈数据进行了内容分析。
本研究在挪威公共医疗环境中进行。12位患有严重精神疾病并接受治疗的青少年的父母参与了研究。
确定了四个主题：（1）自主治疗，但有一定限度；（2）父母的重要角色；（3）对信息和支持的需求；（4）争取个性化治疗和服务协调。
用户参与在青少年心理健康护理中至关重要，父母在共同决策过程中发挥着重要作用。然而，用户参与和共同决策带来了几个困境。青少年患精神疾病时，父母参与治疗决策可能是必要的，但同时可能会阻碍这些青少年的赋权和康复。父母、青少年和医疗专业人员之间的合作可以提高治疗参与度和依从性，但可能会受到不同利益的挑战。卫生服务机构应提供以家庭为导向的服务，以利用父母作为资源的潜力，并尽量减少利益冲突。
两名青少年用户代表参与了研究设计。
