Johnston Bridget, Bowman Fiona, Carduff Emma, Donmez Fulya, Lowndes Andy, McKeown Alistair
School of Medicine, Dentistry and Nursing, University of Glasgow, Glasgow, Scotland, UK.
NHS Greater Glasgow and Clyde, Glasgow, Scotland, UK.
Pilot Feasibility Stud. 2022 Feb 7;8(1):32. doi: 10.1186/s40814-022-00983-8.
Playlist for Life is a brief, inexpensive music listening intervention which originated in dementia care, but is increasingly being used for people at the end of life. However, there is a lack of robust empirical research on its application in the hospice setting. Our patient and public involvement group originated the idea for this study. The aim of this feasibility study was to inform the design of a larger effectiveness study on the use of Playlist for Life in the hospice setting.
This study was a mixed-methods feasibility study involving adults at the end of life, family members and hospice staff from one in-patient hospice in Scotland. Eligible patient/family member dyads were approached by hospice staff and if interested, recruited by the researcher. All included participants received the intervention, which involved the provision of an MP3 player and assistance to set up a playlist. Participants were asked to listen to the playlist daily during the intervention period (7 days). Data were collected through patient reported outcome measures and on days 1, 3 and 7 of the intervention period and through participant observation session. Patient/family member dyads and hospice staff also took part in qualitative interviews (Appendix 1) post-intervention, which were audio-recorded, transcribed and analysed thematically. Semi-structured interviews at the end of the intervention period were used to evaluate feasibility and acceptability. An advisory group including patients, family members and staff gave helpful feedback on the qualitative interview questions. Interview questions were the same for all participants and all the questions were asked to all participants.
N = 15 participants were recruited (n = 5 patients, n = 5 family, n = 5 staff. The intervention was appraised positively, particularly regarding its beneficial effect on patient/family relationships. The study design was deemed feasible and acceptable.
The findings of this study will inform the development of a future randomised cluster trial designed to assess the usability and effectiveness of the Playlist for Life personalised music intervention.
This study was not registered as this was a small feasibility study, conducted prior to a pilot study not testing for effectiveness. In addition, the study was non-randomised. The study is registered with NHS ethics and the hospice research and governance team.
“生命播放列表”是一种简短且成本低廉的音乐聆听干预措施,它起源于痴呆症护理领域,但越来越多地被应用于临终患者。然而,关于其在临终关怀环境中的应用,缺乏有力的实证研究。我们的患者及公众参与小组提出了这项研究的想法。这项可行性研究的目的是为一项关于在临终关怀环境中使用“生命播放列表”的更大规模有效性研究的设计提供信息。
本研究是一项混合方法的可行性研究,涉及苏格兰一家住院临终关怀机构中的临终成年人、家庭成员和临终关怀工作人员。临终关怀工作人员会接触符合条件的患者/家庭成员二元组,如果他们感兴趣,由研究人员招募。所有纳入的参与者都接受了干预,包括提供一个MP3播放器并协助创建一个播放列表。要求参与者在干预期间(7天)每天收听该播放列表。通过患者报告的结局指标在干预期的第1天、第3天和第7天收集数据,并通过参与观察环节收集数据。患者/家庭成员二元组和临终关怀工作人员在干预后还参加了定性访谈(附录1),访谈进行了录音、转录并进行了主题分析。在干预期结束时进行的半结构化访谈用于评估可行性和可接受性。一个包括患者、家庭成员和工作人员的咨询小组对定性访谈问题提供了有益的反馈。所有参与者的访谈问题相同,且向所有参与者询问了所有问题。
招募了N = 15名参与者(n = 5名患者,n = 5名家庭成员,n = 5名工作人员)。该干预措施得到了积极评价,特别是在对患者/家庭关系的有益影响方面。研究设计被认为是可行且可接受的。
本研究的结果将为未来一项随机整群试验的开展提供信息,该试验旨在评估“生命播放列表”个性化音乐干预的可用性和有效性。
本研究未进行注册,因为这是一项小型可行性研究,在一项不测试有效性的预试验之前进行。此外,该研究是非随机的。该研究已在英国国家医疗服务体系(NHS)伦理委员会以及临终关怀研究与管理团队进行了注册。