Stoeckel Dragana, Brkić Miroslav, Vesić Zoran
Faculty of Political Science, University of Belgrade, Belgrade, Republic of Serbia.
Health Soc Care Community. 2022 Sep;30(5):e2917-e2927. doi: 10.1111/hsc.13736. Epub 2022 Feb 11.
Minimal general knowledge of the quality of life (QoL) of people with intellectual disabilities and mental health problems (ID/MHP) in Serbia exists at present. The outcomes of the deinstitutionalisation process of these groups, which began in 2015, are very questionable-many individuals have faced challenges, and very few have been deinstitutionalised to date. The purpose of this study was to determine the level of quality of life in the domain of social belonging/community integration, the differences in this domain between persons with ID/MHP living together in institutional residential arrangements and community settings, particularly in supported housing, and the differences in the same domain relating to the service provider (governmental/state-run or non-governmental sector). The results of the study indicate that the level of social belonging for this specific population is low, especially on indicators such as belonging to civic or community clubs or organisations, participating in events in the local community, and establishing friendships and emotional relationships. Users of services provided by the non-governmental sector show slightly higher scores in this domain compared to institutionalised users and users in supported housing. The organisational culture based on institutionalism is transferred to community services, leading to an inability to fulfil the basic principles of proclaimed deinstitutionalisation. The recommendations provided should enable the basing of support services for persons with ID/MHP on the principles of deinstitutionalisation while respecting their rights and facilitating their participation in local communities.
目前,塞尔维亚对智障和心理健康问题患者(ID/MHP)的生活质量了解甚少。始于2015年的这些群体去机构化进程的结果很值得怀疑——许多人面临挑战,到目前为止只有极少数人实现了去机构化。本研究的目的是确定社会归属感/社区融入领域的生活质量水平,在机构居住安排和社区环境(特别是支持性住房)中共同生活的ID/MHP患者在该领域的差异,以及与服务提供者(政府/国营或非政府部门)相关的同一领域的差异。研究结果表明,这一特定人群的社会归属感水平较低,尤其是在诸如属于公民或社区俱乐部或组织、参与当地社区活动以及建立友谊和情感关系等指标上。与机构化使用者和支持性住房使用者相比,非政府部门提供服务的使用者在该领域的得分略高。基于机构主义的组织文化被转移到社区服务中,导致无法实现所宣称的去机构化的基本原则。所提供的建议应能使为ID/MHP患者提供的支持服务基于去机构化原则,同时尊重他们的权利并促进他们参与当地社区。