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患者支持团体:对英国的实践、目的及成效的一项调查。

Patient support groups: A survey of United Kingdom practice, purpose and performance.

作者信息

Groves Jeremy, Cahill Julie, Sturmey Gordon, Peskett Mo, Wade Dorothy

机构信息

Chesterfield Royal Hospital, Calow, Chesterfield, UK.

Intensive Care Society, Patient and Relatives Committee, London, UK.

出版信息

J Intensive Care Soc. 2021 Nov;22(4):300-304. doi: 10.1177/1751143720952017. Epub 2020 Sep 9.

DOI:10.1177/1751143720952017
PMID:35154367
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8829773/
Abstract

BACKGROUND

Critical care survivors face physical, psychological and socio-economic burdens. Peer support is acknowledged as a way individuals can face, accept and overcome the challenges arising from a stressful event. We sought to examine the provision and benefits of peer support to critical care survivors in the UK.

METHOD

We distributed a survey, devised by the patients and relatives committee of the Intensive Care Society and ICUsteps, to contacts in 163 UK Trusts/hospitals with critical care departments. The benefit to individuals was assessed by seeking the views of attendees of two support groups.

RESULTS

A response was received from 91 (56%) of the critical care departments. Of these, 46 (48% of respondents) have patient support groups. Our analysis of comments from 30 people is that support groups greatly benefit service users and staff.

CONCLUSIONS

Attendees of patient support groups gave highly positive comments about the service yet provision of patient support groups in the UK is not universal.

RECOMMENDATIONS

We make a series of recommendations for consideration by UK health care providers.

摘要

背景

重症监护幸存者面临身体、心理和社会经济负担。同伴支持被认为是个人面对、接受和克服压力事件所带来挑战的一种方式。我们试图研究英国为重症监护幸存者提供同伴支持的情况及其益处。

方法

我们向英国163个设有重症监护科室的信托机构/医院的联系人分发了一份由重症监护协会患者及亲属委员会和ICUsteps设计的调查问卷。通过征求两个支持小组参与者的意见来评估对个人的益处。

结果

收到了91个(56%)重症监护科室的回复。其中,46个(占受访者的48%)设有患者支持小组。我们对30人的评论分析表明,支持小组对服务使用者和工作人员都大有裨益。

结论

患者支持小组的参与者对该服务给予了高度积极的评价,但英国患者支持小组的设立并不普遍。

建议

我们提出了一系列建议供英国医疗服务提供者考虑。