Center for Injury Research and Prevention, Children's Hospital of Philadelphia, Philadelphia, Pennsylvania; Division of Emergency Medicine, Department of Pediatrics, Perelman School of Medicine, University of Pennsylvania, Philadelphia, Pennsylvania.
Center for Injury Research and Prevention, Children's Hospital of Philadelphia, Philadelphia, Pennsylvania.
J Adolesc Health. 2022 May;70(5):829-832. doi: 10.1016/j.jadohealth.2021.12.011. Epub 2022 Feb 11.
We surveyed healthcare providers to determine the extent to which they discuss transition-to-adulthood topics with autistic patients without intellectual disabilities.
Seventy-four healthcare providers in the Philadelphia area reported on the patient age at which they begin transition conversations, topics covered, and provider comfort. We calculated the proportion of providers who endorsed each transition topic, overall and by clinical setting.
Providers initiated transition-related conversations at a median age of 16 years (IQR: 14, 18), with over half reporting they were "somewhat" or "a little" comfortable with discussions. Nearly all providers discussed at least one healthcare, well-being, and mental health topic, while basic need-related discussions were limited.
Results suggest providers may delay and feel poorly prepared to provide anticipatory guidance to autistic patients for transition to adulthood. Future efforts to enhance the available resources and preparation available to providers are essential to meet autistic patients' needs.
我们调查了医疗保健提供者，以确定他们在多大程度上与没有智力障碍的自闭症患者讨论成年过渡期的话题。
费城地区的 74 名医疗保健提供者报告了他们开始进行过渡对话的患者年龄、涵盖的话题以及提供者的舒适度。我们计算了每个过渡话题的提供者认可的比例，总体上和按临床环境划分。
提供者在中位数年龄为 16 岁（IQR：14，18）时开始进行与过渡相关的对话，超过一半的人表示他们对讨论“有些”或“有点”感到舒适。几乎所有的提供者都讨论了至少一个医疗、福祉和心理健康话题，而基本需求相关的讨论则有限。
结果表明，提供者可能会延迟并对为自闭症患者提供成年过渡期的预期指导感到准备不足。未来需要加强提供给提供者的可用资源和准备工作，以满足自闭症患者的需求。
