孤独症谱系障碍及其他精神、行为和发育障碍青少年的医疗保健过渡规划。
Health Care Transition Planning Among Youth with ASD and Other Mental, Behavioral, and Developmental Disorders.
机构信息
Centers for Disease Control and Prevention, National Center for Health Statistics, 3311 Toledo Road, Hyattsville, MD, 20782, USA.
A.J. Drexel Autism Institute, Drexel University, Philadelphia, PA, USA.
出版信息
Matern Child Health J. 2020 Jun;24(6):796-804. doi: 10.1007/s10995-019-02858-6.
OBJECTIVE
To estimate the prevalence of health care transition components among youth with autism spectrum disorder (ASD) aged 12-17 using the 2016 National Survey of Children's Health (NSCH), compared to youth with other mental, behavioral, or developmental disorders (MBDDs) or youth without MBDDs.
METHODS
The 2016 NSCH is a nationally and state representative survey that explores issues of health and well-being among children ages 0-17. Within the NSCH, parents of a subset of youth, ages 12-17, are asked a series of questions about their youth's eventual transition into the adult health care system. The current study explores components of this transition, comparing youth diagnosed with ASD, youth with other mental, behavioral, or developmental disorders (MBDDs), and youth without MBDDs.
RESULTS
Approximately 1-in-4 youth with ASD had actively worked with their doctor to understand future changes to their health care, significantly less than youth with other MBDDs and youth without MBDDs. Fewer than 2-in-5 youth with ASD had met with their doctor privately or had a parent who knew how their youth would be insured when they reached adulthood.
CONCLUSIONS
The current analysis of a nationally representative sample of youth reveals discrepancies in the proportion of youth with ASD receiving appropriate health care transition planning compared to youth with other MBDDs and youth without MBDDs. These findings suggest the potential for barriers among youth with ASD to effectively transitioning into the adult health care system.
目的
利用 2016 年全国儿童健康调查（NSCH）估计 12-17 岁自闭症谱系障碍（ASD）青少年的医疗过渡组件的流行率，并与患有其他精神、行为或发育障碍（MBDD）或无 MBDD 的青少年进行比较。
方法
2016 年 NSCH 是一项全国性和州代表性调查，旨在探讨 0-17 岁儿童健康和福祉的问题。在 NSCH 中，一部分年龄在 12-17 岁的青少年的父母被问到一系列关于他们的青少年最终过渡到成人医疗保健系统的问题。本研究探讨了这一过渡的组成部分，比较了患有 ASD 的青少年、患有其他精神、行为或发育障碍（MBDD）的青少年和没有 MBDD 的青少年。
结果
约 1/4 的 ASD 青少年积极与他们的医生合作，了解他们未来的医疗保健变化，明显低于患有其他 MBDD 的青少年和没有 MBDD 的青少年。不到 2/5 的 ASD 青少年曾与他们的医生私下会面，或有父母知道他们的孩子成年后将如何获得保险。
结论
目前对全国代表性青少年样本的分析显示，与患有其他 MBDD 和无 MBDD 的青少年相比，接受适当医疗过渡计划的 ASD 青少年比例存在差异。这些发现表明，ASD 青少年在有效过渡到成人医疗保健系统方面可能存在障碍。
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