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新泽西州不同癌症幸存者的生存过渡护理体验和生存准备情况。

Survivorship transition care experiences and preparedness for survivorship among a diverse population of cancer survivors in New Jersey.

机构信息

Section of Behavioral Sciences, Rutgers Cancer Institute of New Jersey, New Brunswick, New Jersey, USA.

Blood Disorders Program, Rutgers Cancer Institute of New Jersey, New Brunswick, New Jersey, USA.

出版信息

Eur J Cancer Care (Engl). 2022 Mar;31(2):e13553. doi: 10.1111/ecc.13553. Epub 2022 Feb 15.

DOI:10.1111/ecc.13553
PMID:35166393
Abstract

OBJECTIVES

The aims were (1) to characterise preparedness for survivorship and (2) to evaluate sociodemographic, medical, survivorship care transition experiences (e.g., receiving a survivorship care plan), practical (e.g., cancer-related financial hardships and information needs) and psychological (e.g., fear of recurrence) factors with preparedness for survivorship.

METHODS

Three hundred and forty-six residents of Southern New Jersey who were diagnosed in 2015 or 2016 with bladder, breast, gynaecological, colorectal, lung, melanoma, prostate or thyroid cancer were identified and consented by the New Jersey State Cancer Registry. Participants completed a questionnaire assessing preparedness, provider care transition practices, financial hardships, information needs and fear of cancer recurrence. Correlations and multivariate analyses were conducted to identify factors associated with preparedness for survivorship.

RESULTS

Participants reported feeling somewhat prepared for survivorship. More than half reported not receiving a written survivorship care plan and many desired more information about follow-up tests, symptoms monitoring and maintaining good nutrition and health. Receipt of chemotherapy, limited transition care planning, limited discussion of medical and psychosocial effects, high information needs and financial hardship were predictors of low preparedness.

CONCLUSION

Identifying and addressing factors associated with survivorship preparedness at end of treatment and over cancer survivorship trajectory will foster higher quality survivorship experiences.

摘要

目的

(1)描述生存准备情况,(2)评估社会人口学、医疗、生存护理过渡期经历(如获得生存护理计划)、实际情况(如癌症相关经济困难和信息需求)和心理因素(如恐惧复发)与生存准备情况的关系。

方法

从新泽西州癌症登记处确定了 346 名 2015 年或 2016 年被诊断为膀胱癌、乳腺癌、妇科癌、结直肠癌、肺癌、黑色素瘤、前列腺癌或甲状腺癌的南泽西居民,并获得了他们的同意。参与者完成了一份调查问卷,评估生存准备情况、提供者护理过渡期实践、经济困难、信息需求和对癌症复发的恐惧。进行相关性和多变量分析,以确定与生存准备情况相关的因素。

结果

参与者报告说对生存准备情况感到有些准备。超过一半的人报告说没有收到书面的生存护理计划,许多人希望获得更多关于随访检查、症状监测以及保持良好营养和健康的信息。接受化疗、有限的过渡期护理计划、有限的医疗和心理社会影响讨论、高信息需求和经济困难是生存准备不足的预测因素。

结论

在治疗结束和癌症生存期间识别和处理与生存准备相关的因素,将促进更高质量的生存体验。

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