Departamento de Tocoginecologia, Universidade Estadual de Campinas, Campinas, SP, Brazil.
Departamento de Enfermagem, Universidade de Évora, Évora, Portugal.
Rev Bras Ginecol Obstet. 2022 May;44(5):475-482. doi: 10.1055/s-0042-1743092. Epub 2022 Feb 17.
To assess the quality of life (QoL) of pregnant women with systemic lupus erythematosus (SLE) treated at a high-risk prenatal outpatient clinic during the third trimester of gestation.
An observational descriptive study was performed in a high-risk prenatal outpatient clinic. Women in the third trimester of pregnancy and undergoing antenatal care between July 2017 and July 2019 answered the abbreviated World Health Organization Quality of Life (WHOQOL-BREF) questionnaire, consisting of 26 questions divided into 4 domains (physical, psychological, social and environmental).
We interviewed 50 pregnant women with a mean gestational age of 30 weeks (standard deviation [SD]: 10 weeks) who were diagnosed with SLE. The average age of the participants was 30 years (SD: 14.85), and the average time since the diagnosis of SLE was of 9.06 years (SD: 6.8 years). Most participants had a partner, did not plan their pregnancy (76%), and did not use contraception prior to pregnancy (80%). The score of each domain ranges from 0 (the worst score) to 100 (the best score). The means ± SDs of the scores of the participants on each domain were: physical - 52.21 ± 18.44); psychological - 64.17 ± 18.56); social - 66.33 ± 27.09); and environmental - 64.56 (18.53). The means ± SDs of the general QoL, and health-related QoL items were of 70.50 ± 24.06 and 70.00 ± 30.72 respectively.
The physical domain presented the lowest scores compared with the other three domains. Pregnant women with SLE had high overall QoL scores, and their health-related QoL scores were also relatively high.
评估在妊娠晚期高危产前门诊接受治疗的系统性红斑狼疮（SLE）孕妇的生活质量（QoL）。
在高危产前门诊进行了一项观察性描述性研究。2017 年 7 月至 2019 年 7 月期间，接受产前护理且处于妊娠晚期的女性回答了简短的世界卫生组织生活质量（WHOQOL-BREF）问卷，该问卷由 26 个问题组成，分为 4 个领域（身体、心理、社会和环境）。
我们采访了 50 名平均孕周为 30 周（标准差[SD]：10 周）的诊断为 SLE 的孕妇。参与者的平均年龄为 30 岁（SD：14.85 岁），SLE 的平均诊断时间为 9.06 年（SD：6.8 年）。大多数参与者有伴侣，不计划怀孕（76%），且在怀孕前不使用避孕措施（80%）。每个领域的得分范围从 0（最差得分）到 100（最佳得分）。参与者在每个领域的平均得分分别为：身体 - 52.21 ± 18.44）；心理 - 64.17 ± 18.56）；社会 - 66.33 ± 27.09）；和环境 - 64.56（18.53）。总体 QoL 和健康相关 QoL 项目的平均得分分别为 70.50 ± 24.06 和 70.00 ± 30.72。
与其他三个领域相比，身体领域的得分最低。患有 SLE 的孕妇总体 QoL 评分较高，其健康相关 QoL 评分也相对较高。
