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“我们必须设法找到一种方法,一座临床桥梁”——自闭症成年人在获取和接受心理健康问题支持方面的经历:一项系统综述与主题元综合分析

"We Have to Try to Find a Way, a Clinical Bridge" - autistic adults' experience of accessing and receiving support for mental health difficulties: A systematic review and thematic meta-synthesis.

作者信息

Brede Janina, Cage Eilidh, Trott Joseph, Palmer Lisa, Smith Anika, Serpell Lucy, Mandy Will, Russell Ailsa

机构信息

Research Department of Clinical, Educational and Health Psychology, University College London, 1-19 Torrington Place, London WC1E 6BT, UK.

Department of Psychology, Faculty of Natural Sciences, University of Stirling, Stirling, FK9 4LA, Scotland, UK.

出版信息

Clin Psychol Rev. 2022 Apr;93:102131. doi: 10.1016/j.cpr.2022.102131. Epub 2022 Feb 9.

Abstract

Co-occurring mental health difficulties among autistic adults are common and this association has implications for mental health services. Gaining a comprehensive understanding of autistic adults' experiences of accessing and receiving mental health support is a critical step to fully inform service provision. We conducted a systematic review and meta-synthesis of qualitative studies exploring autistic adults' mental health service experiences, triangulating the perspectives of autistic adults, clinicians and parents. Electronic database searches in MEDLINE, PsycINFO and Embase were conducted up to October 2021. This identified 10,068 studies, of which 38 met study inclusion criteria. Using a thematic synthesis approach, we generated three superordinate analytical themes "Lonely, difficult service experience", "Complexity needs flexibility" and "Collaboration and empowerment", each with several subthemes. Our findings show that currently, mental health services do not adequately support autistic adults, and can even cause additional harm. There is a need for a more flexible, comprehensive and holistic approach, considering how being autistic affects the individual's mental health presentation and tailoring support to their needs. Building trusting relationships, listening to autistic adults, and empowering them to take agency, appear to be fundamental steps towards more successful mental health care provision.

摘要

自闭症成年患者中同时存在心理健康问题的情况很常见,这种关联对心理健康服务具有重要意义。全面了解自闭症成年患者获得和接受心理健康支持的经历,是为服务提供提供充分信息的关键一步。我们对探索自闭症成年患者心理健康服务经历的定性研究进行了系统综述和元综合分析,整合了自闭症成年患者、临床医生和家长的观点。截至2021年10月,我们在MEDLINE、PsycINFO和Embase数据库中进行了电子检索。共识别出10068项研究,其中38项符合研究纳入标准。采用主题综合法,我们生成了三个上位分析主题:“孤独、艰难的服务体验”、“复杂性需要灵活性”和“协作与赋权”,每个主题都有几个子主题。我们的研究结果表明,目前心理健康服务未能充分支持自闭症成年患者,甚至可能造成额外伤害。需要一种更灵活、全面和整体的方法,考虑自闭症如何影响个体的心理健康表现,并根据他们的需求提供量身定制的支持。建立信任关系、倾听自闭症成年患者的意见并赋予他们自主权,似乎是实现更成功的心理健康护理的基本步骤。

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