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英国自闭症成年人对医疗保健系统的体验:元民族志研究。

How healthcare systems are experienced by autistic adults in the United Kingdom: A meta-ethnography.

机构信息

Cardiff University, UK.

The University of Sheffield, UK.

出版信息

Autism. 2024 Sep;28(9):2166-2178. doi: 10.1177/13623613241235531. Epub 2024 Mar 11.

Abstract

Autistic adults are more likely to experience mental and physical health difficulties, and yet can find it difficult to get the support that they need. A meta-ethnographic approach was used to review the existing research on autistic adults' experiences of accessing healthcare. Four databases were searched for qualitative and mixed-method studies which looked at the experiences of autistic adults who did not also have a learning disability when using healthcare services in the United Kingdom. Fifteen papers met the criteria to be included, and seven steps were used to analyse the information and develop new themes. Three main themes were identified: , and This review highlights how damaging misdiagnosis, inappropriate treatment, overwhelming environments and systems that are difficult to access can have on the well-being of autistic adults. Limited knowledge and understanding about autism knowledge among healthcare professionals along with autistic adult's own communication and sensory differences indicate that there is a need for improved training developed with autistic adults and adaptations.

摘要

自闭症成年人更有可能经历身心健康方面的困难,但他们可能难以获得所需的支持。本研究采用元人种学方法,对自闭症成年人在英国获得医疗保健服务方面的经验进行了综述。在四个数据库中搜索了定性和混合方法的研究,这些研究考察了没有学习障碍的自闭症成年人在使用医疗保健服务时的体验。有 15 篇论文符合纳入标准,并使用七个步骤来分析信息并提出新的主题。确定了三个主要主题:医疗保健的获取、沟通和医疗保健的提供。本综述强调了误诊、不适当的治疗、压倒性的环境以及难以获得的系统对自闭症成年人的健康状况的破坏性影响。医疗保健专业人员对自闭症的知识有限,以及自闭症成年人自身的沟通和感官差异,表明需要为自闭症成年人制定和调整改进的培训。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8d05/11403927/0864e025ab60/10.1177_13623613241235531-fig1.jpg

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