University of Bradford, School of Nursing and Healthcare Leadership, Bradford, West Yorkshire, England.
Martin House Children's Hospice, Wetherby, England.
Nurs Child Young People. 2022 Sep 1;34(5):14-21. doi: 10.7748/ncyp.2022.e1412. Epub 2022 Feb 21.
Children's hospices provide a range of services for babies, children and young people who have a life-limiting or life-threatening condition, including care after death in specialist 'cool bedrooms'. Care after death is a challenging but important element of hospice care.
The aims of the study were to identify the practices of staff providing care after death in UK children's hospices, notably their moving and handling practices and their management of physiological deterioration, and to produce recommendations that promote safe and consistent practice in moving and handling and in managing physiological deterioration after death in UK children's hospices.
An electronic survey was sent to all 54 UK children's hospices. Free-text responses were analysed using deductive content analysis and used to add depth to the quantitative findings.
Out of 54 children's hospices, 33 responded to the survey. There were great variations in the way hospices delivered care after death, notably in length of stay, interventions and equipment. The lack of consistent practice grounded in evidence-based policy and training may mean that some staff experience higher levels of stress and anxiety than others and that some staff take risks when providing care after death, particularly to express empathy towards bereaved families.
Recommendations are made about moving and handling a child's body after death and managing its physiological deterioration. Hospices can use these recommendations to develop policy and training, standardise what is expected of staff and support practitioners in adequately caring for children after death.
儿童收容所为患有绝症或危及生命疾病的婴儿、儿童和年轻人提供一系列服务，包括在专业的“凉爽卧室”中提供死后护理。死亡后的护理是收容所护理的一个具有挑战性但重要的组成部分。
本研究旨在确定英国儿童收容所中提供死亡后护理的工作人员的实践，特别是他们的搬运和处理实践以及他们对生理恶化的管理，并提出建议，以促进英国儿童收容所中在搬运和处理以及在管理死后生理恶化方面的安全和一致的实践。
向所有 54 家英国儿童收容所发送了电子调查。使用演绎内容分析对自由文本回复进行分析，并用于深入了解定量发现。
在 54 家儿童收容所中，有 33 家对调查做出了回应。收容所在提供死亡后护理的方式上存在很大差异，特别是在停留时间、干预措施和设备方面。缺乏基于循证政策和培训的一致实践可能意味着一些工作人员比其他人经历更高水平的压力和焦虑，并且一些工作人员在提供死亡后护理时承担风险，特别是为了向悲痛欲绝的家庭表达同情。
提出了有关死后搬运和处理儿童身体以及管理其生理恶化的建议。收容所可以利用这些建议制定政策和培训，使工作人员的期望标准化，并支持从业者在儿童死后充分护理。
