Independent Researcher, Portsmouth, UK.
Womens Health (Lond). 2022 Jan-Dec;18:17455057221078726. doi: 10.1177/17455057221078726.
The experiences of women like me, diagnosed with HIV before the development of effective antiretrovirals, tend to be neglected and overlooked. Research, policy and services can better serve us if our lived experiences are known and understood within a contextual framework. This small study revisited published personal experience stories by women diagnosed with HIV before 1992 in order to examine what the women said and why.
Due to limited data, a single published collection of 12 stories was chosen, . Narrative analysis was used to make some overarching sense of identified themes, plots and genres within the women's accounts. This method allows for a deep contextual reading. I adopted an inductive and reflexive approach using my lived experience to weave in contextual detail and analysis.
In their search for sense-making, the women often expressed their life with HIV as transformative. Speaking out and peer support helped women construct a more positive identity and develop strategies for survival that were influenced by ideas contextually situated in an emerging public health crisis. However, women also felt defined and confined by their status, and others spoke of a conflict in living up to an emerging HIV subjecthood that was adherent to wellness regimes, self-improvement and positive thinking.
The analysis brings to light some of the contradictions and conflicts within these early HIV narratives. Contextually examining women's narratives from the perspective of lived experience offers new readings and fresh insights into wider cultural narratives that may resonate with today's stories of living with HIV.
像我这样在有效抗逆转录病毒药物开发之前被诊断出 HIV 的女性的经历往往被忽视和忽视。如果我们的生活经历在背景框架内被了解和理解，那么研究、政策和服务可以更好地为我们服务。这项小型研究重新审视了 1992 年之前被诊断出 HIV 的女性发表的个人经历故事，以研究女性所说的内容和原因。
由于数据有限，选择了一个已发表的 12 个故事的集合进行研究。叙事分析用于从女性的叙述中确定主题、情节和体裁的总体意义。这种方法允许进行深入的背景阅读。我采用了一种归纳和反思的方法，将我自己的生活经历融入到背景细节和分析中。
在寻找意义的过程中，这些女性经常将自己的 HIV 生活描述为具有变革性的。公开表达和同伴支持有助于女性构建更积极的身份，并制定生存策略，这些策略受到新兴公共卫生危机背景下的各种观念的影响。然而，女性也感到自己的身份被定义和限制，其他人则谈到了在遵守健康生活方式、自我提升和积极思考的新兴 HIV 主体身份方面存在的冲突。
该分析揭示了这些早期 HIV 叙述中的一些矛盾和冲突。从生活经历的角度对女性的叙述进行背景分析，为更广泛的文化叙述提供了新的解读和新的见解，这些叙述可能与当今 HIV 生存的故事产生共鸣。
