Positive Action for Treatment Access, Lagos, Nigeria.
J Int AIDS Soc. 2009 Mar 14;12:4. doi: 10.1186/1758-2652-12-4.
Greater Involvement of People Living with HIV/AIDS represents a mobilising and an organising principle for the involvement of people living with HIV in program and policy responses. People with HIV have been at the forefront of designing and implementing effective HIV treatment, care and prevention activities. However, governments and health systems have yet to act to fully harness the potential and resources of people living with HIV in addressing the epidemic.The lives and experiences of people living with HIV highlight the need for a shift in the existing paradigm of disease management. The high prevalence of HIV amongst health care providers in many countries, exacerbated by stigma towards those with HIV in the health care professions, is seriously undermining the capacity of health systems and signals the need to change the current nature of health care delivery. Moreover, the negative experiences of many people with HIV in relation to their health care as well as in their daily social interactions, coupled with the ever-limited current investment in treatment, care and support, demonstrate that the current system is drastically failing the majority of people with HIV. Current health management systems urgently need to be more effectively maximised, to increase the quality of standards of health care systems and services in resource poor countries. An integrated approach to health care based on a human rights framework, grounded in community realities and delivered in partnership and solidarity with people living with HIV, offers the most viable approach to overcoming the crisis of HIV in the health care system.
艾滋病毒感染者的更大参与代表着动员和组织艾滋病毒感染者参与方案和政策应对的原则。艾滋病毒感染者一直处于设计和实施有效艾滋病毒治疗、护理和预防活动的最前沿。然而,各国政府和卫生系统尚未采取行动,充分利用艾滋病毒感染者的潜力和资源来应对这一流行病。艾滋病毒感染者的生活和经历突出表明,需要改变疾病管理的现有模式。在许多国家,卫生保健提供者中艾滋病毒的高流行率,加上卫生保健专业人员对艾滋病毒感染者的污名化,严重破坏了卫生系统的能力,并表明需要改变目前的医疗服务提供方式。此外,许多艾滋病毒感染者在获得医疗保健方面以及在日常生活中的社会交往方面都有负面经历,再加上目前对治疗、护理和支持的投资有限,这表明当前的系统使大多数艾滋病毒感染者严重失望。目前迫切需要更有效地利用卫生管理系统,提高资源匮乏国家卫生保健系统和服务的质量标准。以人权框架为基础、立足于社区现实、与艾滋病毒感染者建立伙伴关系和团结协作的综合卫生保健方法,为克服卫生保健系统中艾滋病毒危机提供了最可行的办法。