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向前推进的时间?评“头痛治疗、护理提供系统和经济分析的通用结局指标”。

TIME, to move forward? comment on "a universal outcome measure for headache treatments, care-delivery systems and economic analysis".

机构信息

Hospital da Luz Headache Center, Lisboa. Avenida Lusíada nº 100, 1500-650, Lisboa, Portugal.

Universidade Católica Portuguesa, Institute of Health Sciences, Center for Interdisciplinary Research in Health, Lisboa, Portugal.

出版信息

J Headache Pain. 2022 Feb 22;23(1):31. doi: 10.1186/s10194-022-01395-y.

DOI:10.1186/s10194-022-01395-y
PMID:35193489
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8903664/
Abstract

The paper from Steiner et al. suggests that an outcome measure expressed in time units may be an adequate method to assess the impact of headache disorders, regardless of diagnosis or health care setting, proving useful for cost-benefit analysis and health policy definition. Using time lost to each attack - weighted by disability - may prove to be a reliable measure to establish the effectiveness of acute treatment, but if considering also the attack frequency it could evaluate the effects of preventive strategies. A measure such as the Headache Gauge, which translates the proportion of time lost to headache -related disability, has proven to be applicable also in routine clinical practice as well, and can be tested in clinical trials and populational analysis. There are practical limitations, such as disability assessment and the need for prospective data collection to avoid recall bias but it seems consensual that impairment related to primary headache disorders is primarily driven by the TIME stolen from the perfect health status.

摘要

施泰纳等人的论文表明,以时间单位表示的结果测量可能是评估头痛障碍影响的一种充分方法,无论诊断或医疗保健环境如何,这对成本效益分析和卫生政策制定很有用。使用因残疾而失去的每次发作的时间(通过残疾加权)可能被证明是评估急性治疗效果的可靠方法,但如果还考虑发作频率,它可以评估预防策略的效果。像头痛计这样的测量方法,将因头痛相关残疾而失去的时间比例转化为数字,已被证明也适用于常规临床实践,可以在临床试验和人群分析中进行测试。存在实际限制,例如残疾评估和需要前瞻性数据收集以避免回忆偏倚,但人们普遍认为,原发性头痛障碍相关的损伤主要是由从完美健康状态中偷走的时间造成的。

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Are PROMs passing the message? A reflection with real-life migraine patients.患者报告结局指标(PROMs)传递出信息了吗?对偏头痛患者真实生活的思考。
Cephalalgia. 2022 Feb;42(2):162-165. doi: 10.1177/03331024211034509. Epub 2021 Aug 18.
2
A universal outcome measure for headache treatments, care-delivery systems and economic analysis.一种用于头痛治疗、护理传递系统和经济分析的通用结果测量方法。
J Headache Pain. 2021 Jul 1;22(1):63. doi: 10.1186/s10194-021-01269-9.
3
Headache Gauge: a real-life calendar-based tool for headache monitoring.头痛计量表:一种基于真实生活日历的头痛监测工具。
Neurol Sci. 2021 Oct;42(10):4163-4174. doi: 10.1007/s10072-021-05080-x. Epub 2021 Feb 4.
4
A Comparison of the Chronic Migraine Epidemiology and Outcomes (CaMEO) Study and American Migraine Prevalence and Prevention (AMPP) Study: Demographics and Headache-Related Disability.慢性偏头痛流行病学与转归(CaMEO)研究和美国偏头痛患病率与预防(AMPP)研究的比较:人口统计学和头痛相关残疾情况
Headache. 2016 Sep;56(8):1280-9. doi: 10.1111/head.12878. Epub 2016 Jun 28.
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Interictal burden attributable to episodic headache: findings from the Eurolight project.发作性头痛所致发作间期负担:来自Eurolight项目的研究结果
J Headache Pain. 2016;17:9. doi: 10.1186/s10194-016-0599-8. Epub 2016 Feb 16.
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The impact of cognitive symptoms on migraine attack-related disability.认知症状对偏头痛发作相关残疾的影响。
Cephalalgia. 2016 Apr;36(5):422-30. doi: 10.1177/0333102415604471. Epub 2015 Sep 8.
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How well do headache patients remember? A comparison of self-report measures of headache frequency and severity in patients with migraine.头痛患者的记忆力如何?偏头痛患者头痛频率与严重程度自我报告测量的比较。
Headache. 2009 May;49(5):669-72. doi: 10.1111/j.1526-4610.2009.01411.x.