Institute of Nursing and Midwifery, Faculty of Health Sciences, Jagiellonian University - Collegium Medicum, Krakow, Poland.
Jagiellonian University - Collegium Medicum, Krakow, Poland.
Pol Przegl Chir. 2021 Sep 23;94(1):34-40. doi: 10.5604/01.3001.0015.2754.
<b>Introduction:</b> Crohn's disease (CD) is a chronic inflammatory disorder of the gastrointestinal tract characterized by periodsof remission and exacerbations of varying severity. The symptoms include: abdominal pain, diarrhea, flatulence, nausea, lossof appetite, weight loss, weakness, and changes in body temperature. Treatment is based on a combination of nutritional treatment and pharmacotherapy. Sometimes surgery can be necessary. The quality of life and disease acceptance are essential elements of the functioning of people with CD. </br> </br> <b>Aim:</b> The aim of the study is to analyze the factors affecting the quality of life and the level of disease acceptance in patients suffering from Crohn's disease </br></br> <b> Material and methods:</b> The study was conducted in a group of 46 patients diagnosed with Crohn's disease. The study was carried out using the proprietary questionnaire, AIS, and WHOQOL-BREF. </br></br> <b>Results:</b> The study group was dominated by young people. The average age of respondents was 34.28. The quality of life and the level of CD patients' disease acceptance were at an average level. The average score obtained by respondents in the Acceptanceof Illness Scale (AIS) was 28.37. The study revealed a significant impact of disease acceptance level on the respondents' assessment of quality of life.</br> </br> <b> Conclusions:</b> Patients' quality of life and level of disease acceptance are influenced by demographic factors and the clinical course of disease. Older patients after several surgeries for CD should receive more intensive psychological care. Health educationof patients with CD regarding disease, self-care, and skillful support are key in increasing the assessment of quality of life and the level of disease acceptance. Further research is required in a larger group of patients with CD subject to surgical treatment.
<b>引言：</b> 克罗恩病（CD）是一种慢性胃肠道炎症性疾病，其特征为缓解期和不同严重程度加重期交替出现。其症状包括：腹痛、腹泻、腹胀、恶心、食欲不振、体重减轻、乏力和体温变化。治疗基于营养治疗和药物治疗的结合。有时需要手术。生活质量和疾病接受度是 CD 患者功能的重要组成部分。</br> </br> <b>目的：</b> 本研究旨在分析影响克罗恩病患者生活质量和疾病接受度的因素。</br></br> <b>材料和方法：</b> 本研究纳入了 46 名确诊为克罗恩病的患者。研究采用专用问卷、AIS 和 WHOQOL-BREF 进行。</br></br> <b>结果：</b> 研究组以年轻人为主。受访者的平均年龄为 34.28 岁。患者的生活质量和疾病接受度处于平均水平。在接受疾病量表（AIS）中，受访者的平均得分为 28.37。研究表明，疾病接受度水平对受访者生活质量评估有显著影响。</br> </br> <b>结论：</b> 患者的生活质量和疾病接受度受到人口统计学因素和疾病临床过程的影响。多次接受 CD 手术的老年患者应接受更强化的心理护理。对 CD 患者进行疾病、自我护理和技能支持方面的健康教育，是提高生活质量评估和疾病接受度的关键。需要对更多接受手术治疗的 CD 患者进行更大规模的研究。
