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厄瓜多尔儿科专业人员对自闭症早期识别实践的经验与态度:一项初步调查

Experiences and Attitudes on Early Identification Practices of Autism: A Preliminary Survey of Pediatric Professionals in Ecuador.

作者信息

Buffle Paulina, Naranjo Alfredo, Gentaz Edouard, Vivanti Giacomo

机构信息

Department of Psychology, Faculty of Psychology and Educational Sciences, University of Geneva, 1211 Geneva, Switzerland.

School of Pediatrics, Faculty of Medicine, Pontificia Universidad Católica de Quito, Quito 170143, Ecuador.

出版信息

Children (Basel). 2022 Jan 18;9(2):123. doi: 10.3390/children9020123.

Abstract

Early identification of children with autism is necessary to support their social and communicative skills and cognitive, verbal, and adaptive development. Researchers have identified several barriers to early diagnosis. Data collected in low- and middle-income contexts-where the vast majority of children in the world live-is scarce. In Ecuador, as in many other countries, estimates are lower compared to the global prevalence. Health authorities estimate a prevalence of 0.28% (0.18%-0.41%) in children aged five years old or less. Based on the hypothesis that, as in many parts of the world, children in Ecuador are not routinely screened and that this situation may result from poor recognition of this condition, our objective was to identify potential obstacles to case identification in pediatric settings. Several barriers, consistent with those identified in other countries, were reported by 153 participants on a survey, including lack of time, lack of resources to refer, fear of unnecessarily alarming families, and lack of information to guide families with concerns. The vast majority of participants are aware of the need for a screening tool for autism detection but report a lack of knowledge of its formal application. Most of the barriers reported in this study could be overcome by educational programs tailored to professional needs in order to support the well-being of children with autism and their families.

摘要

早期识别自闭症儿童对于支持他们的社交和沟通技能以及认知、语言和适应性发展至关重要。研究人员已经确定了早期诊断的几个障碍。在低收入和中等收入环境(世界上绝大多数儿童生活的地方)收集的数据很少。与许多其他国家一样,厄瓜多尔的估计患病率低于全球患病率。卫生当局估计,五岁及以下儿童的患病率为0.28%(0.18%-0.41%)。基于这样的假设,即与世界许多地区一样,厄瓜多尔的儿童没有进行常规筛查,这种情况可能是由于对这种疾病认识不足导致的,我们的目标是确定儿科环境中病例识别的潜在障碍。153名参与者在一项调查中报告了与其他国家发现的障碍一致的几个障碍,包括时间不足、缺乏转诊资源、担心不必要地惊吓家庭以及缺乏指导有疑虑家庭的信息。绝大多数参与者意识到需要一种自闭症检测筛查工具,但报告称对其正式应用缺乏了解。本研究中报告的大多数障碍可以通过根据专业需求定制的教育项目来克服,以支持自闭症儿童及其家庭的福祉。

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