Developmental Biology and Cancer Research and Teaching Department, Great Ormond Street Institute of Child Health, University College London, London, UK.
Specialist Neonatal and Paediatric Surgery Unit, Great Ormond Street Hospital, London, UK.
Pediatr Surg Int. 2022 Apr;38(4):533-539. doi: 10.1007/s00383-022-05074-6. Epub 2022 Feb 24.
To undertake a pilot study estimating patient-level costs of care for paediatric short bowel syndrome (SBS) from the healthcare provider perspective.
A pilot group of patients with anatomical SBS was selected at a single specialist tertiary centre in the United Kingdom. The Patient Level Information and Costing System (PLICS) was used to extract costing data for all hospital-based activities related to SBS, from the implementation of PLICS in 2016 to April 2021. Patient-specific and pooled data were reported descriptively in per patient-year terms.
Five patients had full PLICS data available for the 5-year study period and 2 patients had 4 years of data. The median cost for hospital care of SBS was £52,834 per patient-year (range £1804-£331,489). The key cost drivers were inpatient beds, pharmacy, and staffing costs, which made up > 60% of annual costs. In the first 3 years following index admission (n = 2), there was a steady decline in the annual cost of care to a level comparable with patients with established SBS.
Patient-level cost of care analysis for SBS is feasible using PLICS. Hospital-related costs vary widely between and within individual patients over time. Key drivers of cost are related to complications of SBS.
从医疗服务提供者的角度出发，对小儿短肠综合征（SBS）的患者护理成本进行试点研究。
在英国的一家专科三级中心选择了一组解剖性 SBS 患者作为试点小组。从 2016 年实施 PLICS 到 2021 年 4 月，使用患者水平信息和成本系统（PLICS）提取与 SBS 相关的所有基于医院的活动的成本数据。以每位患者每年的方式报告患者特定和汇总数据的描述性数据。
在 5 年的研究期间，有 5 名患者有完整的 PLICS 数据，有 2 名患者有 4 年的数据。SBS 患者每年的医院护理费用中位数为 52834 英镑（范围为 1804-331489 英镑）。主要成本驱动因素是住院床位、药房和人员成本，占年度成本的 60%以上。在索引入院后的前 3 年（n=2），护理成本的年增长率稳步下降，达到与已建立 SBS 的患者相当的水平。
使用 PLICS 对 SBS 的患者护理成本进行分析是可行的。随着时间的推移，医院相关成本在个体患者之间和内部差异很大。成本的主要驱动因素与 SBS 的并发症有关。
