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“这不再像是我们的家了”:医疗技术对家中有医疗需求复杂、依赖技术的孩子的家庭生活的影响。

'It doesn't feel like our house anymore': The impact of medical technology upon life at home for families with a medically complex, technology-dependent child.

作者信息

Mitchell Tracy Karen, Bray Lucy, Blake Lucy, Dickinson Annette, Carter Bernie

机构信息

Department of Public Health, Policy and Systems, Institute of Population Health, University of Liverpool, UK.

Faculty of Health, Social Care and Medicine, Edge Hill University, Ormskirk, Lancashire, UK.

出版信息

Health Place. 2022 Mar;74:102768. doi: 10.1016/j.healthplace.2022.102768. Epub 2022 Feb 23.

Abstract

The study aimed to identify how medical technology impacts upon the home and life at home. Inductive auto-driven photo-elicitation or semi-structured interviews were conducted with technology-dependent children/young people (n = 2) and their family members (n = 15) from 10 families. Thematic analysis generated three themes: Altered physicality and look of the home; Altered sounds in the home; and 'It's worth it! Technology enables us to stay as a family'. Fundamentally, the detrimental impacts of living with medical technology were perceived as worth it as these enabled their child to be at home. Home was not home, and families were incomplete without their child at home.

摘要

该研究旨在确定医疗技术如何影响家庭及居家生活。对来自10个家庭的技术依赖型儿童/青少年(n = 2)及其家庭成员(n = 15)进行了归纳式自动驱动照片诱导或半结构化访谈。主题分析产生了三个主题:家庭物理环境和外观的改变;家中声音的改变;以及“这是值得的!技术使我们能够作为一个家庭团聚”。从根本上说,人们认为使用医疗技术带来的不利影响是值得的,因为这些技术能让他们的孩子待在家里。没有孩子在家,家就不完整,家庭也不完整。

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