Founder and CEO, HidraMed Solutions, Galway, Ireland.
Br J Nurs. 2022 Feb 24;31(4):S34-S41. doi: 10.12968/bjon.2022.31.4.S34.
Hidradenitis suppurativa (HS) is an under-reported, poorly understood and often mismanaged inflammatory skin condition that manifests itself as painful, inflamed areas or boils. Although blind at first, it develops into exuding lesions often with tracking sinuses, leaving painfully stretched and scarred skin. While advances have been made in surgical and pharmaceutical interventions to interrupt the disease and prevent infection, effective wound management, evidence and guidelines remain limited. This article describes the experiences of an HS sufferer, in her quest for a satisfactory and acceptable wound management solution. It is hoped that the author's criteria for the ideal wound management system for HS will be the starting point for discussion and development of sound HS wound care guidelines.
化脓性汗腺炎（HS）是一种报道较少、了解不足且经常处理不当的炎症性皮肤疾病，表现为疼痛、发炎的区域或疖子。尽管一开始是盲目的，但它会发展为渗出性病变，通常伴有窦道，留下痛苦拉伸和瘢痕的皮肤。虽然在手术和药物干预方面已经取得了进展，可以中断疾病并预防感染，但有效的伤口管理、证据和指南仍然有限。本文描述了一位 HS 患者的经历，她一直在寻求满意和可接受的伤口管理解决方案。希望作者对 HS 理想伤口管理系统的标准将成为讨论和制定合理 HS 伤口护理指南的起点。
