• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

在新冠疫情早期门诊初级保健环境中照料患有复杂疾病的儿童

Caring for Children With Medical Complexity in the Early COVID-19 Pandemic in an Ambulatory Primary Care Setting.

作者信息

Driansky Allison, Pilapil Mariecel, Bianco Kristina, Steinway Caren, Feigenbaum Sheri, Yang Anna, Jan Sophia

机构信息

Steven and Alexandra Cohen Children's Medical Center, Pediatrics, New Hyde Park, NY, United States.

Donald and Barbara Zucker School of Medicine at Hofstra, Northwell Health, Hempstead, NY, United States.

出版信息

Front Pediatr. 2022 Feb 9;10:813393. doi: 10.3389/fped.2022.813393. eCollection 2022.

DOI:10.3389/fped.2022.813393
PMID:35223695
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8864108/
Abstract

BACKGROUND

Children with medical complexity (CMC) have multiple chronic conditions and require a high level of coordinated healthcare. The risk of COVID-19 among CMC is unclear.

OBJECTIVES

We aim to identify and describe the prevalence and experience of COVID-19 among CMC and their caregivers during the initial weeks of the COVID-19 pandemic in the NY metropolitan area.

METHODS

We performed a cross-sectional study of children enrolled in a structured clinical program for CMC at a large urban, academic general pediatrics practice in NY.

RESULTS

In our patient population ( = 132), 16 patients had a known exposure with parents being the most common exposure in 37.5% ( = 6). Two patients were hospitalized for COVID-19 while the remainder of the confirmed or suspected COVID-19 cases were managed as an outpatient.

CONCLUSIONS

Common sources of COVID-19 exposure were family members and home care providers. Almost all of our patients experienced interruption of medical care including missed therapies and visits.

摘要

背景

患有复杂疾病的儿童(CMC)有多种慢性病,需要高水平的协调医疗保健。CMC感染新冠病毒的风险尚不清楚。

目的

我们旨在确定并描述纽约市大都会地区新冠疫情最初几周内,CMC及其照顾者中新冠病毒感染的患病率及经历。

方法

我们对纽约市一家大型城市学术性普通儿科诊所中参加CMC结构化临床项目的儿童进行了横断面研究。

结果

在我们的患者群体(n = 132)中,16名患者有已知的接触史,父母是最常见的接触源,占37.5%(n = 6)。两名患者因新冠病毒感染住院,其余确诊或疑似新冠病毒感染病例作为门诊患者处理。

结论

新冠病毒感染的常见接触源是家庭成员和家庭护理人员。几乎所有我们的患者都经历了医疗护理中断,包括错过治疗和就诊。

相似文献

1
Caring for Children With Medical Complexity in the Early COVID-19 Pandemic in an Ambulatory Primary Care Setting.在新冠疫情早期门诊初级保健环境中照料患有复杂疾病的儿童
Front Pediatr. 2022 Feb 9;10:813393. doi: 10.3389/fped.2022.813393. eCollection 2022.
2
Usability and Feasibility of an in-Home Remote Exam Device in Children with Medical Complexity During the COVID-19 Pandemic.新冠疫情期间用于患有复杂疾病儿童的家用远程检查设备的可用性和可行性
Telemed J E Health. 2024 Dec;30(12):2870-2875. doi: 10.1089/tmj.2024.0058. Epub 2024 Aug 20.
3
Care coordination for children with medical complexity in Japan: Caregivers' perspectives.日本医疗复杂儿童的护理协调:照顾者的观点。
Child Care Health Dev. 2020 Jul;46(4):436-444. doi: 10.1111/cch.12767. Epub 2020 Apr 23.
4
The impact of the COVID-19 pandemic on children with medical complexity.COVID-19 大流行对患有复杂疾病的儿童的影响。
BMC Pediatr. 2022 Aug 23;22(1):496. doi: 10.1186/s12887-022-03549-y.
5
Exploring the experience of family caregivers of children with medical complexity during COVID-19: a qualitative study.探索 COVID-19 期间患有复杂疾病儿童的家庭照顾者的体验:一项定性研究。
BMC Pediatr. 2023 Apr 6;23(1):160. doi: 10.1186/s12887-023-03944-z.
6
An assessment of information needs and workflows for emergency service providers and caregivers of children with medical complexity.评估有医疗复杂性的儿童的急诊服务提供者和护理人员的信息需求和工作流程。
BMC Health Serv Res. 2023 May 8;23(1):453. doi: 10.1186/s12913-023-09366-y.
7
Information needs for designing a home monitoring system for children with medical complexity.设计一个用于患有复杂疾病的儿童的家庭监测系统的信息需求。
Int J Med Inform. 2019 Feb;122:7-12. doi: 10.1016/j.ijmedinf.2018.11.011. Epub 2018 Nov 26.
8
Exploring the experiences of parent caregivers of children with chronic medical complexity during pediatric intensive care unit hospitalization: an interpretive descriptive study.探索儿科重症监护病房住院期间患有慢性重病儿童的父母照顾者的体验:一项解释性描述性研究。
BMC Pediatr. 2019 Aug 6;19(1):272. doi: 10.1186/s12887-019-1634-0.
9
User-centered design of a longitudinal care plan for children with medical complexity.以患者为中心的复杂病情儿童纵向护理计划设计。
J Am Med Inform Assoc. 2020 Dec 9;27(12):1860-1870. doi: 10.1093/jamia/ocaa193.
10
Impact of telemedicine on health outcomes in children with medical complexity: an integrative review.远程医疗对医疗复杂性儿童健康结果的影响:综合评价。
Eur J Pediatr. 2021 Aug;180(8):2389-2400. doi: 10.1007/s00431-021-04164-2. Epub 2021 Jul 1.

引用本文的文献

1
Children with medical complexity care journey during COVID-19 from providers perspective: a qualitative study.从医疗服务提供者角度看新冠疫情期间患有复杂疾病儿童的护理历程:一项定性研究
BMC Health Serv Res. 2025 May 22;25(1):740. doi: 10.1186/s12913-025-12857-9.
2
"A very different place from when the pandemic started": Lessons learned for improving systems of care for families of children with medical complexity.“与疫情开始时截然不同的地方”:改善为患有复杂疾病儿童的家庭提供护理体系的经验教训
J Child Health Care. 2023 Sep 22:13674935231203274. doi: 10.1177/13674935231203274.
3
School Attendance Decisions for Children With Medical Complexity During COVID-19.儿童在 COVID-19 期间因医疗复杂性而决定是否上学。
Pediatrics. 2023 Jul 1;152(Suppl 1). doi: 10.1542/peds.2022-060352K.

本文引用的文献

1
Effects of COVID-19 on home visiting services for vulnerable families: A cross-state analysis of enrollment, engagement, and attrition patterns.COVID-19 对弱势家庭家访服务的影响:一项州际间关于入组、参与和流失模式的分析。
Fam Syst Health. 2022 Jun;40(2):262-267. doi: 10.1037/fsh0000667. Epub 2021 Dec 20.
2
Facilitating COVID-19 Vaccination Among Caregivers of Children With Medical Complexity.促进患有复杂疾病儿童的照顾者接种新冠疫苗。
Clin Pediatr (Phila). 2021 Nov;60(13):497-500. doi: 10.1177/00099228211036273.
3
Pediatric Intensive Care Hybrid-Style Clinical Round During COVID-19 Pandemic: A Pilot Study.新冠疫情期间儿科重症监护混合式临床查房:一项试点研究
Front Pediatr. 2021 Aug 19;9:720203. doi: 10.3389/fped.2021.720203. eCollection 2021.
4
Parents of Children With Medical Complexity Are Essential Health Care Personnel.患有复杂疾病儿童的父母是重要的医护人员。
Pediatrics. 2021 May;147(5). doi: 10.1542/peds.2021-050160. Epub 2021 Apr 7.
5
Telemedicine in children with medical complexity on home ventilation during the COVID-19 pandemic.COVID-19 大流行期间,家中机械通气的复杂性患儿的远程医疗。
Pediatr Pulmonol. 2021 Jun;56(6):1395-1400. doi: 10.1002/ppul.25289. Epub 2021 Feb 1.
6
Implementation of Telemedicine in a Tertiary Hospital-Based Ambulatory Practice in Detroit During the COVID-19 Pandemic: Observational Study.《COVID-19 大流行期间底特律一家三级医院门诊实践中的远程医疗实施:观察性研究》。
JMIR Public Health Surveill. 2021 Jan 8;7(1):e21327. doi: 10.2196/21327.
7
Pediatric Teleheath: Opportunities Created by the COVID-19 and Suggestions to Sustain Its Use to Support Families of Children with Disabilities.儿科远程医疗:COVID-19 带来的机遇及为支持残疾儿童家庭而持续使用的建议。
Phys Occup Ther Pediatr. 2021;41(1):1-17. doi: 10.1080/01942638.2020.1825032. Epub 2020 Oct 6.
8
Pediatric Critical Care and COVID-19.儿科重症监护与新型冠状病毒肺炎
Pediatrics. 2020 Sep;146(3). doi: 10.1542/peds.2020-1766. Epub 2020 Jun 9.
9
Characteristics and Outcomes of Children With Coronavirus Disease 2019 (COVID-19) Infection Admitted to US and Canadian Pediatric Intensive Care Units.美国和加拿大儿科重症监护病房收治的儿童 2019 年冠状病毒病(COVID-19)感染的特征和结局。
JAMA Pediatr. 2020 Sep 1;174(9):868-873. doi: 10.1001/jamapediatrics.2020.1948.
10
Mitigating the Impacts of the COVID-19 Pandemic Response on At-Risk Children.减轻新冠疫情应对措施对高危儿童的影响。
Pediatrics. 2020 Jul;146(1). doi: 10.1542/peds.2020-0973. Epub 2020 Apr 21.