Oxford University Clinical Research Unit, Ho Chi Minh City, Vietnam.
CBPR Stakeholder Working Group, Ho Chi Minh City, Vietnam.
Front Public Health. 2022 Feb 9;10:795470. doi: 10.3389/fpubh.2022.795470. eCollection 2022.
Approximately 1. 07 million people in Vietnam are infected with hepatitis C virus (HCV). To address this epidemic, the South East Asian Research Collaborative in Hepatitis (SEARCH) launched a 600-patient cohort study and two clinical trials, both investigating shortened treatment strategies for chronic HCV infection with direct-acting antiviral drugs. We conducted ethnographic research with a subset of trial participants and found that the majority were aware of HCV infection and its implications and were motivated to seek treatment. However, people who inject drugs (PWID), and other groups at risk for HCV were under-represented, although injecting drug use is associated with high rates of HCV.
We designed a community-based participatory research (CBPR) study to engage in dialogues surrounding HCV and other community-prioritized health issues with underserved groups at risk for HCV in Ho Chi Minh City. The project consists of three phases: situation analysis, CBPR implementation, and dissemination. In this paper, we describe the results of the first phase (i.e., the situation analysis) in which we conducted desk research and organized stakeholder mapping meetings with representatives from local non-government and community-based organizations where we used participatory research methods to identify and analyze key stakeholders working with underserved populations.
Twenty six institutions or groups working with the key underserved populations were identified. Insights about the challenges and dynamics of underserved communities were also gathered. Two working groups made up of representatives from the NGO and CBO level were formed.
Using the information provided by local key stakeholders to shape the project has helped us to build solid relationships, give the groups a sense of ownership from the early stages, and made the project more context specific. These steps are not only important preliminary steps for participatory studies but also for other research that takes place within the communities.
越南约有 107 万人感染丙型肝炎病毒 (HCV)。为了解决这一疫情，东南亚丙型肝炎研究合作组织 (SEARCH) 启动了一项包含 600 名患者的队列研究和两项临床试验，均旨在研究使用直接作用抗病毒药物治疗慢性 HCV 感染的缩短治疗策略。我们对试验参与者的一部分进行了民族志研究，发现大多数人都意识到 HCV 感染及其影响，并积极寻求治疗。然而，吸毒者（PWID）和其他 HCV 高危人群的代表性不足，尽管注射毒品使用与 HCV 高发病率有关。
我们设计了一项基于社区的参与式研究 (CBPR)，旨在与胡志明市 HCV 和其他社区优先的卫生问题进行对话，目标人群是 HCV 高危的弱势群体。该项目由三个阶段组成：情况分析、CBPR 实施和传播。本文描述了第一阶段（即情况分析）的结果，我们在该阶段进行了桌面研究，并与当地非政府组织和社区组织的代表组织了利益相关者图谱会议，我们使用参与式研究方法来确定和分析与服务不足人群合作的关键利益相关者。
确定了 26 个与关键服务不足人群合作的机构或团体。还收集了有关服务不足社区的挑战和动态的见解。成立了两个由非政府组织和社区组织代表组成的工作组。
利用当地关键利益相关者提供的信息来塑造项目，有助于我们建立牢固的关系，让这些团体从早期就有归属感，并使项目更具针对性。这些步骤不仅是参与式研究的重要初步步骤，也是在社区内进行的其他研究的重要步骤。
