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探讨患者对透析疗法对生活质量和幸福感影响的体验。

Exploring patients' experiences of the impact of dialysis therapies on quality of life and wellbeing.

机构信息

School of Sport, Health and Exercise Sciences, Faculty of Science and Health, University of Portsmouth, Portsmouth, UK.

Academic Department of Renal Medicine, Wessex Kidney Centre, Portsmouth Hospitals NHS Trust, Portsmouth, UK.

出版信息

J Ren Care. 2023 Mar;49(1):15-23. doi: 10.1111/jorc.12416. Epub 2022 Feb 28.

Abstract

BACKGROUND

When people with chronic kidney disease reach kidney failure, renal replacement therapy is usually required to improve symptoms and maintain life. Although in-centre haemodialysis is most commonly used for this purpose, other forms of dialysis are available, including home haemodialysis and peritoneal dialysis.

OBJECTIVES

We aimed to explore the experiences of adults living with chronic kidney disease who were either approaching the need for dialysis or had reached kidney failure and were receiving a form of dialysis. In particular, we explored how different forms of dialysis affect their quality of life, wellbeing, and physical activity.

METHODS

Individual semistructured interviews were conducted with 40 adults with kidney failure, comprising four groups (n = 10 each): those receiving in-centre haemodialysis, home haemodialysis or peritoneal dialysis, or predialysis. Interviews were transcribed verbatim, thematically analysed, and then composite vignettes were subsequently developed to present a rich narrative of the collective experiences of each group.

FINDINGS

Compared with adults who were predialysis, quality of life and wellbeing improved upon initiation of their home haemodialysis or peritoneal dialysis. Conversely, minimal improvement was perceived by those receiving in-centre haemodialysis. Low physical activity was reported across all four groups, although those receiving home haemodialysis and peritoneal dialysis reported a greater desire and ability to be physically active than those in-centre.

CONCLUSION

These findings highlight that dialysis modalities not requiring regular hospital attendance (i.e., home haemodialysis and peritoneal dialysis) improve independence, quality of life, wellbeing, and can facilitate a more physically active lifestyle.

摘要

背景

当慢性肾脏病患者发展至肾衰竭时,通常需要肾脏替代疗法来改善症状并维持生命。虽然中心血液透析是最常用于此目的的方法,但也有其他形式的透析可供选择,包括家庭血液透析和腹膜透析。

目的

我们旨在探讨接近需要透析或已进入肾衰竭并正在接受透析的成年慢性肾脏病患者的体验。特别是,我们探讨了不同形式的透析如何影响他们的生活质量、幸福感和身体活动。

方法

对 40 名肾衰竭成人进行了个体半结构化访谈,分为 4 组(每组 10 人):接受中心血液透析、家庭血液透析或腹膜透析或预透析的患者。访谈逐字记录、进行主题分析,然后开发综合案例以呈现每个组的集体经验的丰富叙述。

发现

与预透析的成年人相比,开始家庭血液透析或腹膜透析后,生活质量和幸福感得到改善。相比之下,接受中心血液透析的患者感知到的改善最小。所有 4 组的身体活动均较低,但接受家庭血液透析和腹膜透析的患者比中心组报告了更大的身体活动意愿和能力。

结论

这些发现强调了不需要定期住院治疗的透析方式(即家庭血液透析和腹膜透析)可提高独立性、生活质量和幸福感,并促进更积极的生活方式。

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