• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

“压力可能难以承受,但美好时光就像发现金子一样”:一项用于为自闭症谱系障碍患者的照顾者开发自助式积极重新评估应对干预措施提供信息的第一阶段建模调查。

"The stress can be unbearable, but the good times are like finding gold": A phase one modelling survey to inform the development of a self-help positive reappraisal coping intervention for caregivers of those with autism spectrum disorder.

机构信息

Faculty of Life Sciences and Education, School of Psychology and Therapeutic Studies, University of South Wales, Pontypridd, United Kingdom.

Faculty of Medicine, Health and Life Science, Department of Psychology, Swansea University, Swansea, United Kingdom.

出版信息

PLoS One. 2022 Mar 3;17(3):e0264837. doi: 10.1371/journal.pone.0264837. eCollection 2022.

DOI:10.1371/journal.pone.0264837
PMID:35239745
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8893638/
Abstract

UNLABELLED

Caregivers of individuals with ASD can experience various practical, psychological, and social demands and need effective ways of coping to ameliorate the negative effects of caregiving. Numerous coping strategies are available, but the literature shows that caregivers can still struggle to cope, suggesting that interventions to support coping efforts could be beneficial. The MRC framework advocates the systematic development and evaluation of interventions, and this study was conducted to inform the future development of a self-help Positive Reappraisal Coping Intervention (PRCI) for these caregivers. The aim was to establish whether positive reappraisal coping strategies were used and associated with greater psychological wellbeing, prior to developing such an intervention.

METHOD

Caregivers of individuals with ASD (N = 112) responded to items from an existing PRCI (Lancastle, 2006; Lancastle & Boivin, 2008), by writing about aspects of caregiving that reflected the meaning of each item. They also completed questionnaires assessing resilience, caregiving burden, and positive and negative emotions.

RESULTS

Participants provided significantly more positive responses than negative responses to PRCI items, demonstrating their use of positive reappraisal coping. Thematic analyses showed that positive responses focused on factors such as their loved one's personality and achievements, the contributions caregivers had made to this person's progress, the support received, and their own personal development. Positive reappraisal coping was associated with greater resilience, more positive and less negative emotions, and a lesser sense of caregiver burden.

CONCLUSION

This modelling study suggests that positive reappraisal strategies were used by caregivers and associated with greater psychological wellbeing. The findings will inform the development of a self-help PRCI for the caregivers of those with ASD. Future studies will systematically evaluate that PRCI to determine the nature of intervention effects and mediators and moderators of effects.

摘要

未加标签

照顾 ASD 患者的个体的人可能会经历各种实际的、心理的和社会的需求,并且需要有效的应对方式来减轻照顾带来的负面影响。有许多应对策略可用,但文献表明,照顾者仍然难以应对,这表明支持应对努力的干预可能是有益的。MRC 框架主张系统地开发和评估干预措施,本研究旨在为这些照顾者的自我帮助积极重新评估应对干预(PRCI)的未来发展提供信息。目的是在开发此类干预措施之前,确定是否使用了积极的重新评估应对策略,以及这些策略是否与更大的心理健康相关。

方法

ASD 患者的照顾者(N=112)通过撰写反映每个项目意义的照顾方面的内容,对现有的 PRCI(Lancastle,2006 年;Lancastle 和 Boivin,2008 年)的项目做出回应。他们还完成了评估韧性、照顾负担以及积极和消极情绪的问卷。

结果

与 PRCI 项目的负面反应相比,参与者提供了更多的积极反应,这表明他们使用了积极的重新评估应对策略。主题分析表明,积极的反应集中在他们所爱的人的个性和成就、照顾者对这个人的进步所做出的贡献、所得到的支持以及他们自己的个人发展等因素上。积极的重新评估应对与更大的韧性、更多的积极情绪和更少的消极情绪以及较少的照顾负担相关。

结论

这项建模研究表明,照顾者使用了积极的重新评估策略,并且与更大的心理健康相关。研究结果将为 ASD 患者的照顾者的自我帮助 PRCI 的开发提供信息。未来的研究将系统地评估该 PRCI,以确定干预效果的性质以及效果的中介和调节因素。

相似文献

1
"The stress can be unbearable, but the good times are like finding gold": A phase one modelling survey to inform the development of a self-help positive reappraisal coping intervention for caregivers of those with autism spectrum disorder.“压力可能难以承受,但美好时光就像发现金子一样”:一项用于为自闭症谱系障碍患者的照顾者开发自助式积极重新评估应对干预措施提供信息的第一阶段建模调查。
PLoS One. 2022 Mar 3;17(3):e0264837. doi: 10.1371/journal.pone.0264837. eCollection 2022.
2
The PRCI study: design of a randomized clinical trial to evaluate a coping intervention for medical waiting periods used by women undergoing a fertility treatment.PRCI 研究:一项随机临床试验的设计,旨在评估一种应对干预措施,用于接受生育治疗的女性在医疗等待期间使用。
BMC Womens Health. 2013 Sep 3;13:35. doi: 10.1186/1472-6874-13-35.
3
The impact of a self-administered coping intervention on emotional well-being in women awaiting the outcome of IVF treatment: a randomized controlled trial.一项自我管理应对干预对等待 IVF 治疗结果的女性情绪健康的影响:一项随机对照试验。
Hum Reprod. 2014 Jul;29(7):1459-70. doi: 10.1093/humrep/deu093. Epub 2014 May 7.
4
Feasibility of Coping Effectiveness Training for Caregivers of Children with Autism Spectrum Disorder: a Genetic Counseling Intervention.针对自闭症谱系障碍儿童照料者的应对效能训练的可行性:一项遗传咨询干预措施
J Genet Couns. 2018 Feb;27(1):252-262. doi: 10.1007/s10897-017-0144-1. Epub 2017 Sep 6.
5
Needs, strain, coping, and mental health among caregivers of individuals with autism spectrum disorder: A moderated mediation analysis.自闭症谱系障碍患者照顾者的需求、压力、应对方式和心理健康:一个有调节的中介分析。
Autism. 2019 Nov;23(8):1936-1947. doi: 10.1177/1362361319833678. Epub 2019 Mar 20.
6
Clarifying the benefits of the positive reappraisal coping intervention for women waiting for the outcome of IVF.阐明积极重新评价应对干预对等待体外受精结果的女性的益处。
Hum Reprod. 2014 Dec;29(12):2712-8. doi: 10.1093/humrep/deu253. Epub 2014 Oct 14.
7
Facilitating pathways to care: A qualitative study of the self-reported needs and coping skills of caregivers of young adults diagnosed with early psychosis.促进照护途径:一项定性研究报告,探讨了早期精神病诊断的年轻成年患者照顾者的自报需求和应对技能。
J Psychiatr Ment Health Nurs. 2020 Aug;27(4):368-379. doi: 10.1111/jpm.12591. Epub 2020 Feb 11.
8
A meta-review of stress, coping and interventions in dementia and dementia caregiving.关于痴呆症及痴呆症护理中的压力、应对方式和干预措施的元综述。
BMC Geriatr. 2016 May 18;16:106. doi: 10.1186/s12877-016-0280-8.
9
The health and well-being of caregivers of children with cerebral palsy.脑瘫患儿照料者的健康与幸福。
Pediatrics. 2005 Jun;115(6):e626-36. doi: 10.1542/peds.2004-1689.
10
Types of strain among family members of individuals with autism spectrum disorder across the lifespan.自闭症谱系障碍患者家庭成员在整个生命周期中的压力类型。
Res Dev Disabil. 2017 Sep;68:42-51. doi: 10.1016/j.ridd.2017.07.003. Epub 2017 Jul 20.

引用本文的文献

1
Psychometric Properties of the Social Responsiveness Scale 2nd Edition (SRS-2) and Development of a Short Version in a Spanish Sample.社交反应量表第二版(SRS - 2)的心理测量特性及西班牙样本中简版量表的编制
J Autism Dev Disord. 2025 Sep 13. doi: 10.1007/s10803-025-07000-w.
2
Supporting the wellbeing of caregivers of children on the autism spectrum: A qualitative report on experiences of attending group dance movement psychotherapy.支持自闭症谱系儿童照顾者的福祉:参加团体舞蹈运动心理治疗的经验定性报告。
PLoS One. 2023 Aug 4;18(8):e0288626. doi: 10.1371/journal.pone.0288626. eCollection 2023.
3
A preliminary exploration of different coping strategies used by Korean immigrant parents of autistic children in high versus low family quality of life ratings.

本文引用的文献

1
Psychometric Evaluation of the Caregiver Burden Inventory in Children and Adolescents With PANS.儿童和青少年 PANS 患者照顾者负担量表的心理测量学评估。
J Pediatr Psychol. 2018 Aug 1;43(7):749-757. doi: 10.1093/jpepsy/jsy014.
2
Support Needs and Coping Strategies as Predictors of Stress Level among Mothers of Children with Autism Spectrum Disorder.自闭症谱系障碍儿童母亲的支持需求与应对策略作为压力水平的预测因素
Autism Res Treat. 2017;2017:8685950. doi: 10.1155/2017/8685950. Epub 2017 Dec 25.
3
Types of strain among family members of individuals with autism spectrum disorder across the lifespan.
对高家庭生活质量和低家庭生活质量评分的韩裔自闭症儿童父母使用的不同应对策略进行初步探讨。
Autism. 2023 Jul;27(5):1307-1319. doi: 10.1177/13623613221133961. Epub 2022 Nov 1.
自闭症谱系障碍患者家庭成员在整个生命周期中的压力类型。
Res Dev Disabil. 2017 Sep;68:42-51. doi: 10.1016/j.ridd.2017.07.003. Epub 2017 Jul 20.
4
Individual, parent and social-environmental correlates of caregiving experiences among parents of adults with autism spectrum disorder.自闭症谱系障碍成年患者父母的照顾经历的个体、父母及社会环境相关因素
J Intellect Disabil Res. 2016 May;60(5):401-11. doi: 10.1111/jir.12271.
5
Coping and Well-Being in Parents of Children with Autism Spectrum Disorders (ASD).自闭症谱系障碍(ASD)患儿父母的应对方式与幸福感
J Autism Dev Disord. 2015 Aug;45(8):2582-93. doi: 10.1007/s10803-015-2430-9.
6
The Power of Positivity: Predictors of Relationship Satisfaction for Parents of Children with Autism Spectrum Disorder.积极心态的力量:自闭症谱系障碍儿童家长关系满意度的预测因素
J Autism Dev Disord. 2015 Jul;45(7):1997-2007. doi: 10.1007/s10803-015-2362-4.
7
Clarifying the benefits of the positive reappraisal coping intervention for women waiting for the outcome of IVF.阐明积极重新评价应对干预对等待体外受精结果的女性的益处。
Hum Reprod. 2014 Dec;29(12):2712-8. doi: 10.1093/humrep/deu253. Epub 2014 Oct 14.
8
Parents' experiences of caring for a child with autism spectrum disorder.父母照顾自闭症谱系障碍患儿的经历。
Qual Health Res. 2015 Apr;25(4):569-83. doi: 10.1177/1049732314552455. Epub 2014 Sep 22.
9
Coping and mood during aids-related caregiving and bereavement.艾滋病相关护理和丧亲期间的应对和情绪。
Ann Behav Med. 1996 Mar;18(1):49-57. doi: 10.1007/BF02903939.
10
Statistical notes for clinical researchers: assessing normal distribution (2) using skewness and kurtosis.临床研究人员的统计学笔记:使用偏度和峰度评估正态分布(2)
Restor Dent Endod. 2013 Feb;38(1):52-4. doi: 10.5395/rde.2013.38.1.52. Epub 2013 Feb 26.