Kiami Sheri R, Goodgold Shelley
Department of Physical Therapy, Movement & Rehabilitation Sciences, Northeastern University, 301 Robinson Hall, 360 Huntington Avenue, Boston, MA 02115, USA.
Simmons College, Boston, MA, USA.
Autism Res Treat. 2017;2017:8685950. doi: 10.1155/2017/8685950. Epub 2017 Dec 25.
This study examined maternal stress, coping strategies, and support needs among mothers of children with Autism Spectrum Disorder (ASD). A convenience sample of 70 mothers completed the Parent Stress Index Short Form (PSI-SF), Coping Health Inventory for Parents (CHIP), and Modified Family Needs Questionnaire (FNQ). PSI-SF scores reflected clinically significant levels of stress for 77% of mothers, and mothers identified 62.4% of important needs as unmet. The five most frequently reported important unmet needs were (1) financial support; (2) break from responsibilities; (3) understanding of other after-school program children; (4) rest/sleep; (5) help remaining hopeful about the future. Most coping strategies (81%) were identified as helpful. Additionally, both coping strategies and support needs served as predictors for maternal stress. Maternal stress scores decreased by .402 points for each percent increase in helpful coping strategy, and stress scores increased by .529 points with each percent increase in unmet needs. Given large variation in questionnaire responses across participants and studies, utilization of user-friendly questionnaires, such as the PSI-SF, CHIP, and FNQ, is advocated to determine the evolving important needs unique to each family over the child's lifetime as well as guide prioritization of care, compilation of resources, and referrals for additional services.
本研究调查了自闭症谱系障碍(ASD)患儿母亲的压力、应对策略和支持需求。70名母亲的便利样本完成了《父母压力指数简表》(PSI-SF)、《父母应对健康量表》(CHIP)和《改良家庭需求问卷》(FNQ)。PSI-SF评分显示,77%的母亲存在临床上显著的压力水平,且母亲们认为62.4%的重要需求未得到满足。最常报告的五项未得到满足的重要需求为:(1)经济支持;(2)从责任中解脱出来;(3)对其他课外项目儿童的理解;(4)休息/睡眠;(5)对未来保持希望的帮助。大多数应对策略(81%)被认为是有帮助的。此外,应对策略和支持需求均为母亲压力的预测因素。每增加1%的有效应对策略,母亲压力评分下降0.402分;每增加1%未满足的需求,压力评分增加0.529分。鉴于不同参与者和研究中问卷回答差异很大,提倡使用如PSI-SF、CHIP和FNQ等用户友好型问卷,以确定每个家庭在孩子成长过程中不断变化的独特重要需求,并指导护理的优先级确定、资源整合以及额外服务的转诊。