Dept. of Behavioral Sciences and Social Medicine, Florida State University, Tallahassee, FL, United States.
Medical Marijuana Treatment Clinics of Florida, Tallahassee, FL, United States.
Complement Ther Med. 2022 Jun;66:102821. doi: 10.1016/j.ctim.2022.102821. Epub 2022 Mar 2.
Data collected during routine care holds the potential to support hypothesis generation, study feasibility, and provide insight regarding how to address problems under real world conditions. Currently there are no practice-based research networks in Florida that focus on complementary care in general or medical marijuana specifically. Through an academic-industry partnership, we sought to develop a practice-based research network focused on cannabis science and create a de-identified database for analyses that support hypothesis generation, study feasibility estimation, and a network that also facilitates recruitment into future research studies.
The Complementary Care Practice-Based Research Network (CC-PBRN) is a centralized repository, which contains electronic health records (EHR) from a private medical cannabis health system in the state of Florida.
This paper provides cross-sectional descriptive analyses of the CC-PBRN's 43,802 currently active patients. There are 24 clinics in the network with nine in North Florida, 11 in Central Florida, and 4 in South Florida.
This network serves as a statewide resource for patient-reported outcomes (PRO) research in medical marijuana. The network currently has numerous outpatient practices with thousands of patients that are a potential source of research participants for both observational studies as well as traditional clinical trials. The outpatient clinical practices can also serve as units of analysis for pragmatic trials comparing different care protocols and organizational structure.
常规护理过程中收集的数据有可能支持假说生成、研究可行性，并提供有关如何在实际条件下解决问题的见解。目前，佛罗里达州没有专门针对补充性护理（广义）或医用大麻（狭义）的基于实践的研究网络。通过学术-产业伙伴关系，我们试图开发一个专注于大麻科学的基于实践的研究网络，并创建一个用于分析的去识别数据库，以支持假说生成、研究可行性评估，以及一个有助于未来研究招募的网络。
补充性护理实践为基础的研究网络（CC-PBRN）是一个集中式存储库，其中包含来自佛罗里达州私人医用大麻健康系统的电子健康记录（EHR）。
本文对 CC-PBRN 的 43802 名当前活跃患者进行了横断面描述性分析。该网络中有 24 家诊所，其中 9 家在北佛罗里达州，11 家在中佛罗里达州，4 家在南佛罗里达州。
该网络是医用大麻患者报告结果（PRO）研究的全州资源。该网络目前拥有众多门诊实践，拥有数千名患者，这些患者可能是观察性研究以及传统临床试验的研究参与者的潜在来源。门诊临床实践也可以作为比较不同护理方案和组织结构的实用试验的分析单位。
