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口吃与社会模式。

Stuttering and the social model.

机构信息

Florida State University, 201W. Bloxham St, Tallahassee, FL 32306, USA.

Stammerer, Cambridge, UK.

出版信息

J Commun Disord. 2022 Mar-Apr;96:106200. doi: 10.1016/j.jcomdis.2022.106200. Epub 2022 Feb 23.

Abstract

Stuttering has traditionally been thought of as a defect located within an individual. As such, stuttering is caused by pathology, leading to impaired communication and reduced quality of life. Research from this medical tradition has looked to understand the etiology of stuttering to develop curative therapeutic approaches. From this frame, professionals and academics are experts and holders of knowledge; people who stutter the recipients of this expertise. The social model emerged from within the disability rights movement and offers a counter narrative. It sees the way society is structured as disabling rather than physical impairment itself. Disability is experienced when a person is unable to participate fully in society through a mismatch between their body and the environment around them; thus, disability becomes a dynamic process, not an inherent characteristic. The social model highlights society's norms and values, and, in the case of stuttering, demonstrates how society is designed for, and expects, fluent speakers. From this frame, people who stutter are the experts of their experience and holders of knowledge; professionals and academics are their allies, collaborators, and advocates for social change. This theoretical framework poses challenging questions of the foundational theories upon which stuttering therapy is historically rooted. They call into question the hierarchical structures, power dynamics and even purpose of stuttering therapy and research. In this discussion paper, we will explore the social model of disability and its implications for stuttering therapy and research. We discuss the benefits of a social model approach as well as its limitations.

摘要

口吃传统上被认为是个体内部的缺陷。因此,口吃是由病理学引起的,导致沟通障碍和生活质量下降。这一医学传统的研究旨在了解口吃的病因,以开发治疗方法。在这种框架下,专业人士和学者是专家,是知识的持有者;口吃者是专业知识的接受者。社会模式起源于残疾人权利运动,并提供了一个相反的叙述。它认为社会结构是使能的,而不是身体损伤本身。当一个人与周围环境不匹配,无法充分参与社会时,就会经历残疾;因此,残疾是一个动态的过程,而不是内在的特征。社会模式强调了社会的规范和价值观,就口吃而言,它展示了社会是如何为流利的说话者设计的,并期望他们能够流利地说话。在这种框架下,口吃者是他们自身经历和知识的专家;专业人士和学者是他们的盟友、合作者和社会变革的倡导者。这一理论框架对口吃治疗历史根源的基础理论提出了具有挑战性的问题。它质疑了口吃治疗和研究中的等级结构、权力动态,甚至目的。在这篇讨论论文中,我们将探讨残疾的社会模式及其对口吃治疗和研究的影响。我们讨论了社会模式方法的好处及其局限性。

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