Bessing Barnabas, van der Mei Ingrid, Taylor Bruce V, Honan Cynthia A, Blizzard Leigh, Claflin Suzi B
Menzies Institute for Medical Research, University of Tasmania, Hobart, Tasmania, Australia.
Menzies Institute for Medical Research, University of Tasmania, Hobart, Tasmania, Australia.
Mult Scler Relat Disord. 2022 Apr;60:103717. doi: 10.1016/j.msard.2022.103717. Epub 2022 Mar 3.
Little is known about the impact of online health education on multiple sclerosis (MS)-related knowledge and other health outcomes in the MS community.
To estimate the impact of participating in a massive open online course (MOOC) about MS on course completer MS-related knowledge, health literacy (HL), self-efficacy, resilience, quality of life, and MS symptom severity.
In this cohort study, using a single group pre-test/post-test design (n=560), we examined the effects of MOOC participation on MS-related knowledge and other outcomes using a paired t-test. We used regression and structural equation modelling to examine the association between participant characteristics, changes in other outcomes, and changes in MS-related knowledge.
We found significant increases in MS-related knowledge for people living with MS (PwMS) (+2.13 points, p<0.001) and those without MS (+5.16 points, p<0.001), with larger effect sizes for those with higher educational levels. Among PwMS, there were also significant increases in seven HL subscales and self-efficacy, but no increase in resilience, MS symptoms severity or quality of life. Among people without MS, there were increases in two HL subscales and quality of life, but no increase in resilience or self-efficacy. Changes in MS-related knowledge were not associated with sex or changes in other study outcomes.
There was a significant increase in MS-related knowledge, which was unrelated to the changes in the other study outcomes, both for PwMS and for those not living with MS. Outcome-specific health educational interventions may be needed to effect change in other health outcomes.
关于在线健康教育对多发性硬化症（MS）群体中与MS相关知识及其他健康结果的影响，目前所知甚少。
评估参与一门关于MS的大规模开放在线课程（MOOC）对课程完成者的MS相关知识、健康素养（HL）、自我效能感、心理韧性、生活质量及MS症状严重程度的影响。
在这项队列研究中，采用单组前后测设计（n = 560），我们使用配对t检验来研究参与MOOC对MS相关知识及其他结果的影响。我们使用回归分析和结构方程模型来研究参与者特征、其他结果的变化与MS相关知识变化之间的关联。
我们发现，患有MS的人（PwMS）的MS相关知识有显著增加（+2.13分，p<0.001），未患MS的人也有显著增加（+5.16分，p<0.001），教育水平较高者的效应量更大。在PwMS中，七个HL子量表和自我效能感也有显著增加，但心理韧性、MS症状严重程度或生活质量没有增加。在未患MS的人中，两个HL子量表和生活质量有所增加，但心理韧性或自我效能感没有增加。MS相关知识的变化与性别或其他研究结果的变化无关。
无论是PwMS还是未患MS的人，MS相关知识都有显著增加，且与其他研究结果的变化无关。可能需要针对特定结果的健康教育干预措施来改变其他健康结果。
