Song Wei, Salzer Mark S, Nonnemacher Stacy L, Miller Kaitlin Koffer, Shea Lindsay L
College of Public Health, Temple University, 1700 N. Broad St., Suite 313, Philadelphia, PA 19122, USA.
Temple University Collaborative on Community Inclusion of Individuals with Psychiatric Disabilities, Temple University, 1700 N. Broad St., Suite 304, Philadelphia, PA 19122, USA.
Res Dev Disabil. 2022 May;124:104213. doi: 10.1016/j.ridd.2022.104213. Epub 2022 Mar 12.
With the increasing prevalence of autistic individuals, it is greatly needed to examine the factors impacting their community participation experiences. Where autistic adults live and how that may be related to their participation and quality of life is one environmental factor that has received little attention.
This study explored the association between living arrangements in the community and community participation for autistic adults.
This study used data from a statewide survey of autistic adults (N = 744) to investigate the relationship between living arrangements (live alone with or without support, live with roommate/spouse, or live with family) and the amount, breadth, and sufficiency of community participation.
After controlling for sociodemographic and clinical factors known to be associated with community participation, autistic adults living with family members participated less frequently in community activities over 30 days than those living with a roommate/spouse. However, they experienced similar levels of sufficiency with their participation. Autistic adults living alone with support reported the lowest levels of sufficiency with their participation, although the amount and breadth of their participation were no different from other adults.
These findings have several implications for providing support to enable autistic adults to participate in the areas that are important to them and to the extent they desire. Future research is needed to gain a better understanding of how interests and expectations for participation may be influenced by living situations.
随着自闭症患者数量的不断增加,迫切需要研究影响他们社区参与体验的因素。自闭症成年人的居住地点以及这与他们的参与度和生活质量之间的关系是一个很少受到关注的环境因素。
本研究探讨了社区居住安排与自闭症成年人社区参与之间的关联。
本研究使用了一项对全州自闭症成年人的调查数据(N = 744),以调查居住安排(独自居住有无支持、与室友/配偶同住或与家人同住)与社区参与的数量、广度和充分性之间的关系。
在控制了已知与社区参与相关的社会人口学和临床因素后,与家人同住的自闭症成年人在30天内参与社区活动的频率低于与室友/配偶同住的成年人。然而,他们在参与的充分性方面体验相似。有支持的独自居住的自闭症成年人报告的参与充分性水平最低,尽管他们参与的数量和广度与其他成年人没有差异。
这些发现对于提供支持以使自闭症成年人能够在他们认为重要的领域并在他们期望的程度上参与具有若干启示。未来需要进行研究,以更好地理解参与的兴趣和期望如何可能受到生活状况的影响。