Man Alice, van Ballegooie Courtney
Faculty of Medicine, University of British Columbia, Vancouver, BC, Canada.
Department of Experimental Therapeutics, British Columbia Cancer Research Institute, Vancouver, BC, Canada.
JMIR Pediatr Parent. 2022 Mar 16;5(1):e31820. doi: 10.2196/31820.
Web-based patient education materials (PEMs) are frequently written above the recommended reading level in North America. Poor PEM readability limits the accessibility of medical information for individuals with average literacy levels or lower. Pediatric hospital and association websites have not only been shown to be a preferred source of information among caregivers but have also become a necessity during the COVID-19 pandemic. The readability of Canadian pediatric association websites has not yet been assessed.
The aim of this study is to determine if the content of PEMs from Canadian pediatric associations is written at a reading level that the majority of Canadians can understand.
A total of 258 PEMs were extracted from 10 Canadian pediatric associations and evaluated for their reading level using 10 validated readability scales. The PEMs underwent a difficult word analysis and comparisons between PEMs from different associations were conducted.
Web-based PEMs were identified from 3 pediatric association websites, where the reading level (calculated as a grade level) was found to be an average of 8.8 (SD 1.8) for the Caring for Kids website, 9.5 (SD 2.2) for the Pediatric Endocrine Group website, and 13.1 (SD 2.1) for the Atlantic Pediatric Society website. The difficult word analysis identified that 19.9% (SD 6.6%) of words were unfamiliar, with 13.3% (SD 5.3%) and 31.9% (SD 6.1%) of words being considered complex (≥3 syllables) and long (≥6 letters), respectively.
The web-based PEMs were found to be written above the recommended seventh-grade reading level for Canadians. Consideration should be made to create PEMs at an appropriate reading level for both patients and their caregivers to encourage health literacy and ultimately promote preventative health behaviors and improve child health outcomes.
在北美,基于网络的患者教育材料(PEMs)的编写水平常常高于推荐阅读水平。PEMs可读性差限制了平均识字水平或更低的人群获取医疗信息。儿科医院和协会网站不仅已被证明是护理人员首选的信息来源,而且在新冠疫情期间也成为了必需品。加拿大儿科协会网站的可读性尚未得到评估。
本研究的目的是确定加拿大儿科协会的PEMs内容的编写水平是否大多数加拿大人都能理解。
从10个加拿大儿科协会中提取了总共258份PEMs,并使用10种经过验证的可读性量表对其阅读水平进行评估。对PEMs进行了难词分析,并对不同协会的PEMs进行了比较。
从3个儿科协会网站中识别出了基于网络的PEMs,其中“关爱儿童”网站的阅读水平(以年级水平计算)平均为8.8(标准差1.8),儿科内分泌学会网站为9.5(标准差2.2),大西洋儿科协会网站为13.1(标准差2.1)。难词分析表明,19.9%(标准差6.6%)的单词不常见,分别有13.3%(标准差5.3%)和31.9%(标准差6.1%)的单词被认为是复杂的(≥3个音节)和长的(≥6个字母)。
发现基于网络的PEMs的编写水平高于为加拿大人推荐的七年级阅读水平。应该考虑为患者及其护理人员创建具有适当阅读水平的PEMs,以提高健康素养,并最终促进预防健康行为和改善儿童健康结果。