van Ballegooie Courtney, Wen Jasmine
Experimental Therapeutics, BC Cancer, Vancouver, British Columbia, Canada.
Faculty of Medicine, University of British Columbia, Vancouver, British Columbia, Canada.
PLOS Glob Public Health. 2023 Oct 16;3(10):e0001967. doi: 10.1371/journal.pgph.0001967. eCollection 2023.
The objective of this study was to assess online American patient education material (PEM) related to eye cancers in order to determine the quality of the content and appropriateness of the contents' reading level as it relates to the American population. PEMs were extracted from fifteen American cancer and ophthalmology associations and evaluated for their reading level using ten validated readability scales. PEMs then had all words extracted and evaluated for their difficulty and familiarity. The quality of the PEMS were assessed according to DISCERN, Heath On the Net Foundation Code of Conduct (HONCode), and JAMA benchmarks. Overall, online PEMs from the associations were written at a 11th grade reading level, which is above the recommended 6th grade reading level. The difficult word analysis identified that 26% of words were unfamiliar. Only one of the fifteen association held a HONCode certification while no organization met the standards of all four JAMA benchmarks. The average score for DISCERN was 2.4 out of a total of 5 for the fifteen questions related to treatment option information quality. Consideration should be made to create PEMs at an appropriate grade reading level to encourage health literacy and ultimately promote health outcomes. Associations should also focus on incorporating easily identifiable quality indicators to allow patients to better identify reputable resources.
本研究的目的是评估与眼癌相关的美国在线患者教育材料(PEM),以确定内容质量以及与美国人群相关的内容阅读水平的适宜性。从15个美国癌症和眼科协会提取PEM,并使用10种经过验证的可读性量表评估其阅读水平。然后提取PEM中的所有单词,并评估其难度和熟悉度。根据DISCERN、健康网络基金会行为准则(HONCode)和《美国医学会杂志》(JAMA)基准对PEM的质量进行评估。总体而言,协会提供的在线PEM的阅读水平为11年级,高于建议的6年级阅读水平。难词分析表明,26%的单词不常见。15个协会中只有一个获得了HONCode认证,没有一个组织达到JAMA所有四项基准的标准。在与治疗方案信息质量相关的15个问题中,DISCERN的平均得分为2.4(满分5分)。应考虑创建具有适当年级阅读水平的PEM,以提高健康素养并最终促进健康结果。协会还应专注于纳入易于识别的质量指标,以便患者能够更好地识别可靠的资源。