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一种多学科方法护理患有蓝色橡皮疱痣综合征的孕妇:病例报告。

A multidisciplinary approach to caring for a pregnant patient with blue rubber bleb nevus syndrome: A case report.

作者信息

Daviskiba Sydney, Shuman Hannah, Ayyash Mariam, Vadlamudi Gayathri, Smietana Stefan, Goyert Gregory

机构信息

Wayne State University School of Medicine, Detroit, MI, United States of America.

Department of Obstetrics and Gynecology, Henry Ford Hospital, Detroit, MI, United States of America.

出版信息

Case Rep Womens Health. 2022 Mar 9;34:e00403. doi: 10.1016/j.crwh.2022.e00403. eCollection 2022 Apr.

DOI:10.1016/j.crwh.2022.e00403
PMID:35299692
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8920868/
Abstract

Blue rubber bleb nevus syndrome (BRBNS) is a rare vascular disorder characterized by recurrent, multifocal venous malformations throughout the skin, soft tissue, and numerous internal organs. Pregnant women with BRBNS are at high risk of morbidity and mortality, and thus their care requires careful planning and surveillance. This report highlights the case of a 21-year-old woman, gravida 1, para 0, with BRBNS who was cared for by a multidisciplinary team of providers in obstetrics, maternal-fetal medicine, obstetric anesthesia, hematology, dermatology, gastroenterology, and otorhinolaryngology. The report provides a comprehensive guide to the multidisciplinary management of pregnancy and delivery for patients with BRBNS.

摘要

蓝色橡皮疱痣综合征(BRBNS)是一种罕见的血管疾病,其特征是在皮肤、软组织和许多内部器官中反复出现多灶性静脉畸形。患有BRBNS的孕妇有很高的发病和死亡风险,因此对她们的护理需要精心规划和监测。本报告重点介绍了一名21岁、孕1产0、患有BRBNS的女性病例,她由产科、母胎医学、产科麻醉、血液学、皮肤科、胃肠病学和耳鼻咽喉科的多学科医疗团队进行护理。该报告为BRBNS患者的妊娠和分娩多学科管理提供了全面指南。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1885/8920868/a087eef3ee7e/gr2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1885/8920868/762618864dea/gr1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1885/8920868/a087eef3ee7e/gr2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1885/8920868/762618864dea/gr1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/1885/8920868/a087eef3ee7e/gr2.jpg

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A A Pract. 2021 Aug 23;15(8):e01517. doi: 10.1213/XAA.0000000000001517.
2
Pulmonary embolism during pregnancy in a case of blue rubber bleb nevus syndrome.蓝色橡皮疱痣综合征患者孕期发生肺栓塞
Chin Med J (Engl). 2019 Jun 20;132(12):1499-1501. doi: 10.1097/CM9.0000000000000268.
3
Postoperative disseminated intravascular coagulation in a pregnant patient with Blue Rubber Bleb Nevus Syndrome presenting with acute intestinal obstruction: Case report and literature review.
蓝橡皮疱痣综合征合并急性肠梗阻的孕妇术后发生弥散性血管内凝血:病例报告及文献复习
Int J Surg Case Rep. 2017;39:235-238. doi: 10.1016/j.ijscr.2017.08.026. Epub 2017 Aug 23.
4
Venous malformations of the anterior abdominal wall in blue rubber bleb naevus syndrome: implications for antenatal and intrapartum management.蓝色橡皮疱痣综合征中腹壁前部的静脉畸形:对产前及产时管理的意义
Obstet Med. 2011 Mar;4(1):37-8. doi: 10.1258/om.2010.100070. Epub 2011 Mar 1.
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Anesthetic Implications of an Obstetric Patient with Blue Rubber Bleb Nevus Syndrome.一位患有蓝色橡皮疱痣综合征的产科患者的麻醉相关问题
A A Case Rep. 2016 Mar 15;6(6):146-9. doi: 10.1213/XAA.0000000000000265.
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Pregnancy and blue rubber bleb nevus syndrome.妊娠与蓝色橡皮疱痣综合征。
Eur J Obstet Gynecol Reprod Biol. 2013 Jul;169(2):415-6. doi: 10.1016/j.ejogrb.2013.05.009. Epub 2013 Jun 28.
7
Familial blue rubber bleb nevus syndrome in pregnancy with spinal epidural involvement.妊娠期家族性蓝色橡皮疱痣综合征伴脊髓硬膜外受累
Case Rep Obstet Gynecol. 2013;2013:141506. doi: 10.1155/2013/141506. Epub 2013 May 9.
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