Department of Otolaryngology, University of Miami, Miami, FL, USA.
Department of Pediatrics, Nemours Children's Health, Wilmington, DE, USA.
J Pediatr Psychol. 2022 Jul 19;47(7):785-794. doi: 10.1093/jpepsy/jsac018.
The purpose of this study was to develop and validate a cochlear implant (CI)-specific parenting stress measure using the FDA Guidance on Patient-Reported Outcomes (2009).
The development and psychometric validation of the Parenting Stress-CI module for both the Early Childhood (EC; 0-5 years) and School-Age (SA; 6-12 years) versions are reported in this article. Instrument development consisted of qualitative interviews with parents of children with CIs (EC: N = 19; SA: N = 21), content analysis, item development, and cognitive testing of the instrument. Last, we conducted the psychometric validation (EC: N = 72; SA: N = 64), including analyses of internal consistency, test-retest reliability (∼2 weeks between administrations; N = 24), and convergent validity with the Parenting Stress Index-4 (PSI-4).
The final EC version includes 15 questions, and the SA version includes 8 questions. Both the EC and SA versions had strong reliability (EC α = .88; SA α = .85), with all items significantly correlated with the overall module (r = .43-.80). Both versions also had strong test-retest reliability (r = .99, p < .001). Last, analyses of convergent validity demonstrated significant correlations with the PSI-4 Total Stress scale for both Parenting Stress-CI versions (EC r = .66, p < .00; SA r = .45, p < .001).
The Parenting Stress-CI modules are reliable and valid condition-specific parenting stress instruments for parents of children with CIs ages 0-12 years, filling a significant gap in the literature. These fully validated instruments can be used to assess parental needs for support and guide the development of targeted, family centered interventions.
本研究旨在根据 FDA 关于患者报告结局的指南（2009 年）开发和验证一种特定于人工耳蜗植入（CI）的父母压力测量工具。
本文报告了早期儿童（EC；0-5 岁）和学龄儿童（SA；6-12 岁）版本的育儿压力-CI 模块的开发和心理测量学验证。工具的开发包括对有 CI 儿童的父母进行定性访谈（EC：N=19；SA：N=21）、内容分析、项目开发以及对工具的认知测试。最后，我们进行了心理测量学验证（EC：N=72；SA：N=64），包括内部一致性分析、测试-重测信度（两次评估之间约 2 周；N=24），以及与父母压力指数-4（PSI-4）的收敛效度。
最终的 EC 版本包括 15 个问题，SA 版本包括 8 个问题。EC 和 SA 版本都具有很强的可靠性（EC α=0.88；SA α=0.85），所有项目与整个模块显著相关（r=0.43-0.80）。两个版本也具有很强的测试-重测信度（r=0.99，p<0.001）。最后，收敛效度分析表明，与 PSI-4 总应激量表的相关性在两个育儿压力-CI 版本中均显著（EC r=0.66，p<0.00；SA r=0.45，p<0.001）。
育儿压力-CI 模块是一种可靠且有效的针对 0-12 岁 CI 儿童父母的特定于条件的育儿压力测量工具，填补了文献中的一个重要空白。这些经过充分验证的工具可用于评估父母的支持需求，并指导有针对性的、以家庭为中心的干预措施的制定。
