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本文引用的文献

1
Development and Initial Evaluation of the Anxiety Scale for Autism-Adults.成人自闭症焦虑量表的编制与初步评估
Autism Adulthood. 2020 Mar 1;2(1):24-33. doi: 10.1089/aut.2019.0044. Epub 2020 Mar 11.
2
Anxiety characteristics in individuals with Williams syndrome.个体患威廉斯综合征的焦虑特征。
J Appl Res Intellect Disabil. 2021 Jul;34(4):1098-1107. doi: 10.1111/jar.12864. Epub 2021 Feb 9.
3
How to use and assess qualitative research methods.如何使用和评估定性研究方法。
Neurol Res Pract. 2020 May 27;2:14. doi: 10.1186/s42466-020-00059-z. eCollection 2020.
4
Development and Psychometric Properties of a New Questionnaire to Assess Mental Health and Concerning Behaviors in Children and Young People with Autism Spectrum Disorder (ASD): The Assessment of Concerning Behavior (ACB) Scale.评估自闭症谱系障碍(ASD)儿童和青少年心理健康和相关行为的新问卷的制定和心理测量特性:相关行为评估(ACB)量表。
J Autism Dev Disord. 2021 Aug;51(8):2812-2828. doi: 10.1007/s10803-020-04748-1. Epub 2020 Oct 14.
5
Anxiety in autistic individuals who speak few or no words: A qualitative study of parental experience and anxiety management.极少说话或不说话的自闭症个体的焦虑:一项关于家长经历和焦虑管理的定性研究
Autism. 2021 Feb;25(2):429-439. doi: 10.1177/1362361320962366. Epub 2020 Oct 1.
6
The Impact of Anxiety in Children on the Autism Spectrum.儿童焦虑对自闭症谱系的影响。
J Autism Dev Disord. 2021 Jun;51(6):1909-1920. doi: 10.1007/s10803-020-04673-3.
7
Development of the Macquarie Anxiety Behavioural Scale (MABS): A parent measure to assess anxiety in children and adolescents including young people with autism spectrum disorder.麦格理焦虑行为量表(MABS)的编制:一种用于评估儿童和青少年焦虑的家长测评工具,包括自闭症谱系障碍的年轻人。
J Affect Disord. 2020 Nov 1;276:678-685. doi: 10.1016/j.jad.2020.06.076. Epub 2020 Jul 15.
8
The relationship between intolerance of uncertainty and anxiety in autism: A systematic literature review and meta-analysis.自闭症中不确定性不耐受与焦虑之间的关系:一项系统文献综述与荟萃分析。
Autism. 2020 Nov;24(8):1933-1944. doi: 10.1177/1362361320932437. Epub 2020 Jun 22.
9
Parental Perceptions and Decisions Regarding Maintaining Bilingualism in Autism.家长对自闭症双语维持的看法和决策。
J Autism Dev Disord. 2021 Jan;51(1):179-192. doi: 10.1007/s10803-020-04528-x.
10
Anxiety in young people with autism spectrum disorder: Common and autism-related anxiety experiences and their associations with individual characteristics.自闭症谱系障碍青少年的焦虑:常见的自闭症相关焦虑体验及其与个体特征的关联。
Autism. 2020 Jul;24(5):1111-1126. doi: 10.1177/1362361319886246. Epub 2019 Dec 19.

利用访谈方法为言语能力有限或无言语能力的自闭症个体开发新的焦虑临床评估工具提供信息。

Utilising Interview Methodology to Inform the Development of New Clinical Assessment Tools for Anxiety in Autistic Individuals Who Speak Few or no Words.

机构信息

Department of Psychology, College of Health and Life Sciences, Aston University, Birmingham, B4 7ET, UK.

Warwick Medical School, Mental Health and Wellbeing Unit, University of Warwick, Coventry, UK.

出版信息

J Autism Dev Disord. 2023 Jun;53(6):2328-2348. doi: 10.1007/s10803-022-05509-y. Epub 2022 Mar 18.

DOI:10.1007/s10803-022-05509-y
PMID:35304663
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10229722/
Abstract

Autistic individuals with intellectual disability who speak few or no words are at high risk of anxiety but are underrepresented in research. This study aimed to describe the presentation of anxiety in this population and discuss implications for the development of assessments. Interviews were conducted with 21 parents/carers of autistic individuals and nine clinicians. Data were analysed using content analysis and interpretative phenomenological analysis. Anxiety behaviours described by parents/carers included increased vocalisation, avoidance and behaviours that challenge. Changes to routine were highlighted as triggering anxiety. Clinicians discussed the importance of identifying an individual's baseline of behaviour, knowing an individual well and ruling out other forms of distress. This study raises considerations for early identification of anxiety and for subsequent support.

摘要

患有智力障碍、语言能力有限或无语言能力的自闭症个体患焦虑症的风险很高,但在研究中代表性不足。本研究旨在描述该人群中焦虑症的表现,并讨论对评估方法发展的影响。对 21 名自闭症个体的家长/照顾者和 9 名临床医生进行了访谈。使用内容分析和解释性现象学分析对数据进行了分析。家长/照顾者描述的焦虑行为包括发声增加、回避和挑战行为。日常生活规律的改变被强调为引发焦虑的因素。临床医生讨论了识别个体的行为基线、了解个体和排除其他形式的痛苦的重要性。本研究提出了对焦虑症早期识别和后续支持的考虑。