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儿童设计未来的远程医疗。

Children's Designs for the Future of Telehealth.

机构信息

University of Washington, Seattle, WA.

Microsoft Research, Redmond, WA.

出版信息

AMIA Annu Symp Proc. 2022 Feb 21;2021:207-216. eCollection 2021.

PMID:35308905
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8861718/
Abstract

Telehealth has increased dramatically with COVID-19. However, current telehealth systems are designed for able-bodied adults, rather than for pediatric populations or for people with disabilities. Using a design scenario of a child with a communication disability who needs to access telehealth services, we explore children's ideas of the future of telehealth technology. We analyzed designs generated by six children and found three provocative over-arching design themes. The designs highlight how improving accessibility, accommodating communication preferences, and incorporating home based sensor technologies have the potential to improve telehealth for both pediatric patients and their physicians. We discuss how these themes can be incorporated into practical telehealth designs to serve a variety of patient populations-including adults, children, and people with disabilities.

摘要

随着 COVID-19 的爆发,远程医疗得到了迅猛发展。然而,现有的远程医疗系统是为身体健全的成年人设计的,而不是为儿科患者或残疾人士设计的。我们以一名需要使用远程医疗服务的有沟通障碍的儿童为例,探索了孩子们对远程医疗技术未来的想法。我们分析了六个孩子生成的设计方案,发现了三个引人深思的总体设计主题。这些设计方案强调了如何提高可及性、适应沟通偏好以及整合基于家庭的传感器技术,从而有可能改善儿科患者及其医生的远程医疗体验。我们讨论了如何将这些主题纳入实际的远程医疗设计中,以服务于各种患者群体,包括成年人、儿童和残疾人。

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Children's Designs for the Future of Telehealth.儿童设计未来的远程医疗。
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本文引用的文献

1
Designing Inpatient Portals to Support Patient Agency and Dynamic Hospital Experiences.设计住院患者门户以支持患者代理和动态医院体验。
AMIA Annu Symp Proc. 2021 Jan 25;2020:524-533. eCollection 2020.
2
Ensuring full participation of people with disabilities in an era of telehealth.确保残疾人在远程医疗时代充分参与。
J Am Med Inform Assoc. 2021 Feb 15;28(2):389-392. doi: 10.1093/jamia/ocaa297.
3
A Defining Moment for Pediatric Primary Care Telehealth.儿科初级保健远程医疗的决定性时刻。
JAMA Pediatr. 2021 Jan 1;175(1):9-10. doi: 10.1001/jamapediatrics.2020.1881.
4
Outcomes of a Rapid Adolescent Telehealth Scale-Up During the COVID-19 Pandemic.COVID-19大流行期间青少年远程医疗快速推广的成果
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Variability in adolescent portal privacy features: how the unique privacy needs of the adolescent patient create a complex decision-making process.青少年门户隐私功能的变异性:青少年患者独特的隐私需求如何导致复杂的决策过程。
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6
Supporting Families in Reviewing and Communicating about Radiology Imaging Studies.协助家庭回顾和交流放射影像学检查结果。
Proc SIGCHI Conf Hum Factor Comput Syst. 2017 May 2;2017:5245-5256. doi: 10.1145/3025453.3025754.
7
Bursting the Information Bubble: Identifying Opportunities for Pediatric Patient-Centered Technology.打破信息泡沫:识别以儿科患者为中心的技术机会。
AMIA Annu Symp Proc. 2017 Feb 10;2016:894-903. eCollection 2016.
8
Care Partnerships: Toward Technology to Support Teens' Participation in Their Health Care.关爱伙伴关系:迈向支持青少年参与自身医疗保健的技术。
Proc SIGCHI Conf Hum Factor Comput Syst. 2016 May 7;2016:5337-5349. doi: 10.1145/2858036.2858508.
9
Noninvasive brain-computer interfaces for augmentative and alternative communication.用于增强和替代交流的非侵入性脑机接口。
IEEE Rev Biomed Eng. 2014;7:31-49. doi: 10.1109/RBME.2013.2295097.
10
Brain-computer interface with language model-electroencephalography fusion for locked-in syndrome.基于语言模型-脑电图融合的脑机接口用于闭锁综合征。
Neurorehabil Neural Repair. 2014 May;28(4):387-94. doi: 10.1177/1545968313516867. Epub 2013 Dec 26.