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需要整个社区的努力:影响政策和实践以预防孕妇饮酒并改善胎儿酒精谱系障碍患者的结局。

It takes a village: Influencing policy and practice to prevent alcohol use in pregnancy and promote better outcomes for individuals living with Fetal Alcohol Spectrum Disorder.

机构信息

FASD Research Australia Centre of Research Excellence, Australia.

Telethon Kids Institute, Nedlands, Western Australia, Australia, 6009.

出版信息

Int J Popul Data Sci. 2022 Mar 2;6(1):1703. doi: 10.23889/ijpds.v6i1.1703. eCollection 2021.

Abstract

Fetal Alcohol Spectrum Disorder (FASD) is a neurodevelopmental disorder caused by exposure to alcohol in utero. It has pervasive, lifelong impacts and is recognised as a major public health concern in many countries where alcohol is used. The FASD Research Australia Centre of Research Excellence (CRE) was funded by the National Health and Medical Research Council to generate and translate evidence to address prevention, diagnosis, and management of FASD in Australia. The current paper describes the approach to policy and practice impact taken by our CRE, including our stakeholder engagement processes and the key principles that underlie our approach. We provide examples of policy and practice influence in FASD prevention, diagnosis and management that have been achieved over the past five years and discuss challenges that are routinely faced in the translation of our work.

摘要

胎儿酒精谱系障碍(FASD)是一种由胎儿期暴露于酒精引起的神经发育障碍。它具有普遍的、终身的影响,在许多使用酒精的国家被认为是一个主要的公共卫生关注问题。澳大利亚胎儿酒精谱系障碍研究卓越中心(CRE)由澳大利亚国家卫生与医学研究理事会资助,旨在生成和转化证据,以解决澳大利亚胎儿酒精谱系障碍的预防、诊断和管理问题。本文描述了我们的 CRE 所采取的政策和实践影响方法,包括我们的利益相关者参与过程以及我们方法所依据的关键原则。我们提供了过去五年中在胎儿酒精谱系障碍预防、诊断和管理方面实现的政策和实践影响的例子,并讨论了在我们工作转化中经常面临的挑战。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/d538/8900649/fcfade36ad4a/ijpds-06-1703-g001.jpg

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