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保持团结:社会融合对多发性硬化症患者健康和心理幸福感的作用。

Keeping it together: The role of social integration on health and psychological well-being among individuals with multiple sclerosis.

机构信息

Department of Psychology, Loyola University, Baltimore, Maryland, USA.

Kessler Foundation, East Hanover, New Jersey, USA.

出版信息

Health Soc Care Community. 2022 Nov;30(6):e4074-e4085. doi: 10.1111/hsc.13800. Epub 2022 Mar 24.

Abstract

Research indicates that people with multiple sclerosis (MS) are more likely to report poorer health and well-being than their peers without MS. Fortunately, it is also known that an individual's social and lifestyle factors play a great role on maintaining and promoting one's health and overall well-being. The present study aimed to examine the role that social integration and social support, in particular have on health and psychological well-being (PWB) among individuals with MS. One hundred and eighty three individuals with MS completed measures of social and lifestyle factors, personality, physical and mental health, MS disease symptomatology and PWB. Cross sectional, regression analyses were conducted to determine the role of social and other lifestyle factors (e.g., diet/exercise) on health and PWB. A subset of this sample (108) completed a follow-up assessment. Longitudinal analyses of this sample were also conducted. Consistent with previous findings, the presence of social integration and social support were significant predictors of health and PWB even when taking into account other lifestyle factors (i.e., diet/exercise, substance use, smoking), cardiovascular risk, demographics (i.e., gender, age, education, relationship status) and personality. The role of social integration and support on health and PWB is well established. Present findings confirmed these associations among individuals with MS. These findings suggest that social integration and social support should be a crucial part of MS management and that further interventional studies aimed at improving social integration and reducing social isolation are warranted in an effort to promote and maintain overall health and well-being.

摘要

研究表明,多发性硬化症 (MS) 患者的健康和幸福感比没有 MS 的同龄人更差。幸运的是,也知道个体的社会和生活方式因素对维持和促进健康和整体幸福感起着重要作用。本研究旨在探讨社会融合和社会支持在多发性硬化症患者的健康和心理幸福感 (PWB)中的作用。183 名多发性硬化症患者完成了社会和生活方式因素、个性、身心健康、多发性硬化症疾病症状和 PWB 的测量。进行了横断面、回归分析,以确定社会和其他生活方式因素(例如,饮食/运动)对健康和 PWB 的作用。该样本的一部分(108 人)完成了随访评估。对该样本进行了纵向分析。与先前的发现一致,即使考虑到其他生活方式因素(即饮食/运动、药物使用、吸烟)、心血管风险、人口统计学(即性别、年龄、教育、关系状况)和个性,社会融合和社会支持的存在仍然是健康和 PWB 的重要预测因素。社会融合和支持对健康和 PWB 的作用已得到充分证实。目前的研究结果证实了多发性硬化症患者之间的这些关联。这些发现表明,社会融合和社会支持应该是多发性硬化症管理的重要组成部分,进一步开展旨在改善社会融合和减少社会隔离的干预研究是值得的,以促进和维持整体健康和幸福感。

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