Bačová Martina, Li Pengzhu, Arnold Leonie, Dalla-Pozza Robert, Haas Nikolaus Alexander, Oberhoffer Felix Sebastian
Division of Pediatric Cardiology and Intensive Care, University Hospital, LMU Munich, 81377 Munich, Germany.
Healthcare (Basel). 2022 Mar 9;10(3):504. doi: 10.3390/healthcare10030504.
This study aimed to investigate whether the cardiovascular care of Turner Syndrome (TS) women in Germany is in accordance with the latest clinical practice guidelines established by the 2016 Cincinnati international TS meeting.
An anonymous online questionnaire was created to ask TS subjects about existing cardiovascular conditions and cardiovascular care received. Depending on cardiovascular morbidity and type of medical care received, the fulfillment of the latest clinical practice guidelines for the care of TS women was assessed.
120 TS patients were included in this study. The mean age of TS subjects was 36.79 years. Only 80% of subjects received annual blood pressure measurements within the TS cohort, and only 60% received cardiac imaging according to international clinical practice guidelines. More than 55% of TS women did not feel well informed about TS-specific cardiovascular risk factors by their treating physician.
A potential lack of cardiovascular care might be present in TS women in Germany as the results of this online patient survey suggest. The cardiovascular care of TS patients, particularly cardiac imaging and patient education, needs to receive more attention.
本研究旨在调查德国特纳综合征（TS）女性的心血管护理是否符合2016年辛辛那提国际TS会议制定的最新临床实践指南。
创建了一份匿名在线问卷，询问TS受试者现有的心血管疾病情况以及接受的心血管护理。根据心血管发病率和接受的医疗护理类型，评估了TS女性最新临床实践指南的执行情况。
本研究纳入了120例TS患者。TS受试者的平均年龄为36.79岁。在TS队列中，只有80%的受试者每年接受血压测量，只有60%的受试者根据国际临床实践指南接受心脏成像检查。超过55%的TS女性认为她们的治疗医生没有充分告知她们TS特异性心血管危险因素。
这项在线患者调查结果表明，德国的TS女性可能存在心血管护理不足的情况。TS患者的心血管护理，尤其是心脏成像检查和患者教育，需要得到更多关注。
