Rodríguez-Rubio Pilar, Lacomba-Trejo Laura, Valero-Moreno Selene, Montoya-Castilla Inmaculada, Pérez-Marín Marián
Department of Personality, Assessment and Psychological Treatments, Faculty of Psychology and Speech Therapy, Universitat de València, Av. Blasco Ibáñez, 21, 46010 Valencia, Spain.
Department of Developmental and Educational Psychology, Faculty of Psychology and Speech Therapy, Universitat de València, Av. Blasco Ibáñez, 21, 46010 Valencia, Spain.
Int J Environ Res Public Health. 2022 Mar 8;19(6):3162. doi: 10.3390/ijerph19063162.
Suffering from a chronic disease (CD) in adolescence can significantly impact the emotional health of adolescents and their families. MHealth can be a useful tool for these groups. However, few intervention programmes include the family system. The aim is to design an intervention programme (10Vida) for a paediatric population with a CD, and their families, to improve their adaptation to the disease. The study is a quasi-experimental repeated measures design in a open study, where the patients themselves, and their families, are their own control group. Participants will receive an intervention of seven individual sessions: five sessions with each patient, and two sessions with their caregivers. In the case of the patients, the aim is to improve their emotional state, their self-esteem, and their emotional competencies, reducing their perceived threat of illness. Furthermore, in the case of the caregivers, the aim is to improve their emotional state and reduce their burden. Indirectly, working with caregivers and those being cared for will improve family ties. The pilot study will involve 25 to 30 chronically ill adolescents aged between 12 and 16 years and their primary caregivers. Following the results, the necessary modifications will be included, and the programme will be offered to adolescents and their families who are willing to participate.
青少年患慢性病会对其自身及其家庭的情绪健康产生重大影响。移动健康(mHealth)对这些群体可能是一个有用的工具。然而,很少有干预项目将家庭系统纳入其中。本研究旨在为患有慢性病的儿科患者及其家庭设计一个干预项目(10Vida),以改善他们对疾病的适应能力。该研究是一项开放性研究中的准实验重复测量设计,患者及其家庭自身作为对照组。参与者将接受七次个体治疗:每位患者五次,其照顾者两次。对于患者,目标是改善他们的情绪状态、自尊和情绪能力,降低他们感知到的疾病威胁。此外,对于照顾者,目标是改善他们的情绪状态并减轻他们的负担。间接地,与照顾者和被照顾者合作将改善家庭关系。试点研究将纳入25至30名年龄在12至16岁之间的慢性病青少年及其主要照顾者。根据研究结果,将进行必要的修改,并向愿意参与的青少年及其家庭提供该项目。